26 Years, But Feels More Like 22

[CrazyCatWom]

In August, I celebrated 26 years since I was diagnosed with M.S..

A lot has changed, especially since 2018. However, I've been feeling, lately that I've returned to the way it was for me and my M.S. 22 years ago: getting worse, but can only self-diagnos, on my own with no one to talk to about the 3 pages I wrote yesterday trying to catch up my "Spastic Journal". I have no neurologist to ask about things, no self-help group to meet up with.

There are really only 2 differences. 1. I can no longer drive. 2. And at least until the pharmacy requires another refill authorization, I do have a DMT.

I'm going a little batty, looking for a new neurologist

[jimeka]

Have you got the A/C repaired yet? 😊

[CrazyCatWom in reply to jimeka]

YES! and it is wonderful! It had blown a motor. Fortunately the replacement wasn't outrageously expensive, only the plumber was. But as soon as he installed it and I fired it up, COLD air came out of the vents But when the A/C was out for so long, my M.S. had come roaring back. I thought now there was again A/C, everything would go back to my M.S. normal.

It hasn't. Cognitive problems worse than ever, a dragging left foot, major spacecialty in my right leg and right arm, but worst: an inability to empty my bladder even with taking all 3 doses of Bethanachol daily. And my self-diagnosis is the muscles controlling my bladder are locking up the same way they do in my arm and leg.

I used to be able to call and leave a message or email my neurologist and I would get a call back quickly. Not anymore. The staff of the new neuro does not return phone calls, nor responds to emails. I didn't mind not getting to see her until January. But now March instead to maybe talk to NPs with no updated MRI?!?!

To hell with that! I'm actually shopping for a neurologist who is taking new patients!

Sad thing, though--when I was Googling Neuroscience, there opped up a link for "Top Neurologists in New Mexico". When I clicked on it, the first Neuro on that list?

The amazing neuro I'd had until the end of June 2021.

😪

[rjoneslaw in reply to CrazyCatWom]

Did u look at the neurologist on the MSAA website

[positiveness]

Cats can bring such joy. I hope you feel better soon. I also lost the ability to drive in the past few years.

[BlanketTime1 in reply to positiveness]

cats are wonderful. even on my worst days, they make me smile.

[BlanketTime1]

i don't pity you. i hate neurologist shopping. almost all of them are douches, so it's about balancing that with how much they actually help you.😖 good luck!

[CrazyCatWom in reply to BlanketTime1]

Oh, I know! In the last contact I had with my neuro, I told him, through his actions, he taught me how to evaluate a doctor, how to nail down what I really do want. And I'm realizing more and more, there just ain't any more doctors like him.