MS Diagnosis: Since last one and half year... - My MSAA Community

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MS Diagnosis

DSai profile image
DSai
11 Replies

Since last one and half year I feel burning sensation in my right thigh intermittently that last for 15-20 seconds and goes away with little movement, it does not occur every day, and happened only for particular standing and sleeping position. I did the contrast spinal and brain MRI which came normal, Evoked potential result also came negative. I am still having doubt of having MS, what's your thought on this?

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DSai profile image
DSai
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11 Replies
greaterexp profile image
greaterexp

MS can start very slowly, but with all your tests coming back normal, it's very hard for any physician to figure out what's wrong. I hope you keep pressing for answers, especially if your symptoms change. It's hard to feel something is wrong and not have a clear diagnosis.

jimeka profile image
jimeka

Hi and welcome. I hope that you find this forum very supportive and full of compassion. Just ask any question, someone normally knows the answer, but please feel at home and join in any post. Blessings Jimeka 😊

twooldcrows profile image
twooldcrows

keep track of all of the oddities that go on so when you go see a doctor you have a list of things going on...good luck ...

BettysMom profile image
BettysMom

Where did you get the idea that this symptom could be MS? A short-lived, vague, transient symptom is not going to be due to MS. And now you have the expensive studies that prove it isn't MS. Since this symptom is positional, it is much more likely that that there is intermittent pressure on a lumbar nerve root causing it.

DSai profile image
DSai in reply to BettysMom

Thanks a lot for clarifying my doubt. I was very much upset and worried after googling the symptoms.

Humbrd profile image
Humbrd

I get that feeling in my left thigh. First started 20 years ago long before my diagnosis of MS. It occurred after a major stress event in my life. It kept occuring periodically and still happens even now. It's a numb prickly feeling. Like that whole quadrant of my thigh is asleep. It happens when I'm upright not lying down. My neurologist said it's called neuralgia paresthetica.

If they did tests that came back negative for MS that's wonderful. Just keep any appointments and journal any symptoms you are having as you go on with your life. It's scary to think of MS, so don't.

Best of luck in finding your answers.

DSai profile image
DSai in reply to Humbrd

Thanks for your reply, I am hoping its neuralgia paresthetica only and not MS. Its same for last one and half year without any other symptom. By the way when you have diagnosed with MS?

Humbrd profile image
Humbrd in reply to DSai

Remember that was what my neurologist said, it may not be that. Hopefully your doctor can help you find the answer. Maybe he can do a nerve conduction test.

DSai profile image
DSai in reply to Humbrd

They have done a nerve conduction test on my limbs. Response was normal. So result came ok only.

BettysMom profile image
BettysMom in reply to DSai

Please try to forget about MS. You don't have it. You are having very brief, positional symptoms which are due to intermittent pressure on a peripheral nerve coming off of your spinal cord in the lumbar area. (That's what neuralgia paresthetica is.) This has nothing to do with MS which is a degenerative disease of the central nervous system (the spinal cord and brain). I am really surprised that with your presenting symptom a doctor would order MRIs looking for MS . Having those studies seems to have reinforced your fear that you have MS rather than relieving it.

Neuralgia paresthetica can be diagnosed with a simple history and physical exam. Expensive MRIs are not necessary and not helpful. Please do a computer search for neuralgia paresthetica for treatment advice. Concentrate on anything other than MS which may mean staying away from this forum.

DSai profile image
DSai in reply to BettysMom

Sure, I will do that

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