😠 my world

Went for PT yesterday again—

Different provider—

She evaluated me more harshly...

😡

I am trying to be positive and hopeful...

I have another telephone-med at the end of October—

With the neurosurgeon and the neurologist—-

I want answers!!!

Sorry, I need to vent—

My body is not cooperating and my brain doesn’t help

[Doubled51]

I know exactly what you’re talking about. That’s what they’re saying about my not being able to walk. By brain and legs have to learn to listen to each other again. They’ve known each other for almost 69 years but after surgery they have forgotten each other. After the first surgery that failed they were still acquitted but after the second they are strangers. Just doesn’t make sense to me but who am I ????

Donnie

[Hidden in reply to Doubled51]

Hi my dear friend—

My brain won’t connect with my body

If I don’t look at my feet.. I am on the ground

I can’t even explain it

The PT doctor maybe heard me yesterday?

Enough of me...’

How are you?

[Doubled51 in reply to Hidden]

I’m getting there. Dr said Friday that X-rays were good everything was where it should be. Gave me the choice of going back to rehab or doing home therapy. Of course I chose home. He agreed becAce of mentally I was better not lying in bed staring out the window 23 hrs a day. SoI’m enjoying every minute of my freedom . He said between ms and surgery it would just take time. Started home pt it this week and have been exercising and walking on my high arm walker as much in a day of each of them as I did in 3weeks of rehab. My pt is coming this morning to walk some more. Ot showed us a tub mounted transfer seat on Amazon to get from walker to shower seat and it is coming Friday to help me use it and get a long awaited long hot shower. So I’m just trying to be positive and keep working and believing. Still got plenty of pain but my pain management actually let me keep my 30 mg oxy so I at least have a little something to help. Surgeon said between surgery and ms nerve pain it was just taking awhile for all the nerves to repair.

So like you’ve been I’m just still waiting .

I sure hope you get some answers on your problems because the waiting for months can be extremely frustrating. Let me know when you get some answers.

God bless

[Hidden in reply to Doubled51]

So glad to here Donnie...

Just finished with home health care....

It is hard to do

To say I can’t

[Doubled51 in reply to Hidden]

Yeah it’s very had to do.

This is my 4 th disectomy and spinal fusion but it’s the first time I’ve ever not been able to walk. But like dr said it’s the first since I had MS.

I just finished pt myself so I’m wore out.

It’s a different feeling to say you can’t do things that you’ve always done. Like having to have occupational therapist come Friday to get me in the shower. But I lost all modesty in rehab on the bed pans. That’s when you want to give up. That was the first time in 68 years that anybody but my parents had to wipe my butt. I haven’t been able to get to the toilet since August 20th and still can’t. But I’m looking forward to the day I can.😁😁😁😁😁.

Donnie

[Hidden in reply to Doubled51]

Donnie

I couldn’t poop 💩 at the hospital at all

We were all worried 😟

[Doubled51 in reply to Hidden]

I always waited to the absolute last minute I dreaded it so. But in a month I couldn’t put it off that long. Plus they gave me miralex everyday.😊

Donnie

[greaterexp]

Vent all you like! I’m sorry for the frustration.

[Hidden in reply to greaterexp]

Thanks greaterexp

I wanna run, this morning and can’t

I wanna clean my floors and can’t

Feeling down

I will just sign off and spend the day in prayer

Sorry—yesterday was harsh....

[Kenu in reply to Hidden]

That’s my last fall I was going but my right foot didn’t get message 😡 Down I went hard. People don’t understand that for twenty seven years I have to tell my right foot to move subconsciously all the time, when I get tired 😓 or forget down I go. Prayers are with you and hope things get better 🙏🤗😉👍 Ken 🐾🐾

[Hidden in reply to Kenu]

Thanks always Kenu—

You’re words mean a lot to me.

[greaterexp in reply to Hidden]

I’ll keep you in constant prayer for God’s comfort and help.

[falalalala]

<<HUGS>>

[RoyceNewton]

VENT, and I wish you the best

[Sweetheartonvdayl in reply to RoyceNewton]

U got that right Royce! Vent, vent & then have a nice cocktail!!

😊🙏❤Lisa

[Sweetheartonvdayl]

U can vent to me/us anytime!!!

😊❤Lisa💕

[Hidden in reply to Sweetheartonvdayl]

Thanks dear

Thinking of you

Tell me your woes

[Sweetheartonvdayl in reply to Hidden]

Well. were do I start? I'm not going 🏡 anytime soon until I have a seizure! So I'm gonna try giving "them" what they want

I quit taking 1000mg of Tylenol -every 6 hrs & 600mg of Motrin- every 8hrs , so I'm bound to have PAIN. Plus , I had my nurse 🚶 back&forth on the hard floor- so " wish" me luck( on having a seizure!) Then , maybe, I'll get the DESPERATELY needed pain medication I need...!!##%@&!

[mrsmike9]

I'm sorry...

[hairbrain4]

Vent all you want, you need to get the frustration & stress out. We understand. We can't tell you what to do but we can support you, virtually HUG you, and pray for you. So here's your virtual HUG & prayers that you will find answers soon & start getting better.

[rjoneslaw]

vent on

[Hidden]

Thank you so much

Pray for all of you daily

Physical therapy went good yesterday...

21/2 hours

[pamgarner]

concerning the new therapist,she is allowed to be harsh after she has "walked" a mile in your shoes!

[Sandydemop]

vent on and keep venting. Vent all you want. We are here for you.

[kdali]

Vent away! Limbo land sucks.