Good morning beloved ms family. That is “YOU”. “YOU” have ms, “YOU” are part of the family. It feels nice to be included, doesn’t it? To be with people who understand. who can relate to what “YOU” are going through. People who have been there. Not been there in a book, a technical guide but really been there. That is us, we have been there, we are doing it. “YOU” most certainly have a future. Your life has NOT ended. “YOU are likely not condemned to a wheelchair and terrible disability. Do not lose hope, hope for the future. “YOU” have many years ahead of “YOU” and some smart calculated decisions and they can be good years, maybe not great but most certainly good.
A diagnosis (Dx) of Relapsing-Remitting ms (RRms) does mean many changes for “YOU”. Most people on this site have been through them and I will say lived through them. Some better than others, some worse. That is really your judgement, worse is relative as there is no set A to B to C path for this illness. There are lots of curves and circles but it is a very livable illness.
Be careful what “YOU” read and what “YOU” take in as the gospel truth. A lot of the time they are not. As a child I badly broke my arm. Because of damage to the nerve I was never to use my arm again. The doctors were actually going to remove it. Thanks to my mother and a lot of rehab I still have an arm. A few years ago, because of Trigeminal Neuralgia, I had surgery on my face where nerves were cut to stop the pain in my face. This morning I woke to intense pain in my face. The point is nerves can grow back, lost abilities may come back they are not always gone. I will never fly again but that is a legal issue. I understand that now it is hard, but do not ever give up upon yourself. Others may say it, “YOU” might believe it but DO NOT ever give up. Surprise yourself and them. Do what they said “YOU” can not.
Because I can I know that “YOU” can. When “YOU” are in doubt, remember in the whole world there is at least one person who has absolute faith and belief in “YOU”. I have faith in “YOU”, I believe that this illness may bend “YOU” but like bamboo “YOU” will need never break. “YOU” are far too strong to be broken by some confusing illness no matter what it may do to “YOU”.
Your very first step is to wipe away the tears for a moment, look up Disease-Modifying Therapies. Ocrevus is what “YOU” want, it is the strongest so why not start there. Naturally, speak to your Dr about this, but be prepared. Do not be scared and bewildered, be knowledgeable and prepared. Take notes on your actions, know what “YOU” did when and why. This is a lifelong journey that “YOU” are now undertaking. There is no cure, the treatments are available but NOT 100% effective, but “YOU” my sister\brother have no choice. “YOU” like me are on this ms path until we pass. Do what has to be done to weather the ups and downs. “YOU” can do this. It is normal to cry, to be sad, but why do “YOU” not be relentless and determined. Do everything that “YOU” can to give yourself a great life, even with RRms.
Royce (your ms writer)
I am positive that you can do this, believe in yourself I do and do it
