There are moments when something so captures my attention that I forget about MS. Looking at flowers in my garden does this, listening to certain types of music, laughing, praying, and other things seem to make MS melt in the background. Of course, chocolate does that, too!
What takes your mind off of this disease, even for a moment?
Painting, writing, music...I’d like to say exercising but sometimes that’s the biggest reminder ☹️
OMG you are so right exercises put you so close to the disease and reminds you of your physical limitations.
Sadly...because I love exercise
Hi erash😊
Have you ever tried water exercise like "just 🚶 in the shallow end"
Sadly, all gyms are closed now...
Even just stretching helps.
God bless you erash😊
Lisa❤
Yes, we have a pool and it’s great when bath tub warm 😊
I normally try to exercise a little bit every day. Even following the MS Gym program I have issues doing the most basic of exercises.
I use to be pretty fit and use to exercise a lot. I became sort of an exercise snob. The harder the exercise. The better. The exercise using the heaviest weight I could lift. The better. Not anymore.
I get so upset with myself for my inability too exercise the way I use to. I curse myself out so much trying to follow along that my wife thinks a drunken sailor must be trying to exercise as well.
I keep thinking, hoping, praying that if I keep exercising I will somehow return to my old self. But so far it is only reminding me of what I was and how much I have physically declined over the years. The thought of that alone keeps me from ever forgetting or taking my mind off of having MS.
I do think if I don’t stop feeling sorry for myself and start accepting my physical limitations I am only asking for more heartache. And even though I know this I still go through the same thing every day.
I think most of us understand this struggle. Many have worked hard at accepting the disease, not with defeat, but with adaptation. We are all certainly at different places in terms of our abilities, but most of us try to do as much as we can to maintain as much independence and health as possible.
I wish you the best as you figure out what works for you.
What do you do for exercises? How did you adapt?
It's a new chapter, is how I look at it. Grateful for my former life --_athlete, super cape always on. When I was first dx'd I told my boss, someone stole my cape, Perspective......... Best most normal time for me. When I first wake up, eyes still closed and my body absolutely still. Blessings Cynthia
CynthiaS
Thanks. The first couple hours after waking up is when I feel most productive. I usually have a mental list of things I would like to accomplish for the day thought up the night before. I’m lucky if I get one task finished before I am exhausted. I know my attitude needs work but I am stubborn. Some how some way I will learn to make peace with this crappy condition.
Remind yourself of all the things you can do!
I always say " do the best with what you got&if that's not good enough(for "them)
Then go @$#:%!'yourself!!
Of course I'm talking about the general public!
God bless you MSNWV. 😊
LISA❤
Sweetheartonvdayl
Thank you. I have the @$#:%!'yourself!! part down pat. I need to work on the other part. The important part.
🤣👍
I think MS Gym is more forgiving. I tried doing "Building Better Balance - Free from Falls" routine today (also on YouTube - I initially found it on the National MS Society site) and couldn't. It was really stressful. I used to do it with my eyes closed, but couldn't today and went back to the reassuring MS Gym. I think even trying there makes a difference and works on the muscles.
IFwczs
Yeah it does help. Even though I can’t do all of the exercises correctly at least I am doing them the best I can. I just need to get out of my own way and stay as active as I can . Thanks for the pep talk.
We are in this together. Which MS Gym programs do you use? This is the link I use -
youtube.com/watch?v=SPIJ5xB...
I skip the hip bridge because I can't get off the floor. Also, the heel slide on the right foot is just an imitation since my right foot doesn't lift.
What program are you talking about ? can you tell me how to find it '
Ms gym on YouTube or ms gym.com for membership options
I private-messaged this link to you, but it's not working. If you want me to email this link to you, please private-message to me any email address you can access.
I totally can relate to the awareness of you physical decline. I go to the gym less and less and exercise less and less to nothing over the past 5 years or so, It is a catch 22... the less I exercise the more I notice a physical decline. At least you still try, i used to love swimming. I go tto start to do things again in my place since gyms are out anyway.
watch tv because I don't have to walk anywhere
I'm just sitting in my bed most of the time yelling at the tv depending on what I'm watching
There is always that one character that you just want to shake or smack back into reality.
Or you're watching something that's sooo funny you have tears rolling down your checks and you can't breath
When I'm feeling happy and having fun with my family!!!!♥️ I love water country. It took my mind off of this damn disease until the ride home afterwards. 🤭 It was so worth it!!!! 🙂😍♥️🌹
What is water country?
A water park. 😁♥️🌹
And watching my kids play Baseball/Softball. They're so talented!!! And hanging out with my Hubby!!!😍🤗🙂♥️🌹
Grandkids are such a wonderful creation!
My kids still have a ways to go before they make me a grandma. 🙂🤭 ♥️🌹
Oops! I meant kids.
I've. Always said I wish I could have figured out how to have them first!
Grandkids!!! Listening to my 6year old explain how to play a video game, watching my 8year old do cartwheels, hearing my 3year old tell me he loves me, or listening to my 20year old sing. 😍
Beautiful 🤗
Thank you for sharing your thoughts. So sweet!
I always wished I had family ...But that wasn't in the cards for me..
Now ,I have a family it's ALL OF YOU- my MS family!😊
God bless you 2littletime!
Lisa❤
Always 🤗
Reading a really good book
So true! I miss reading a lot.
I have at least 7 different books going right now. 4 ebooks, 2 physical books, and 1 audio book. I finished one physical book last night. I listen to audio books while driving and I'm almost done with it.
I get carried away by listening to my favorite types of music. I especially like Southern Gospel music. BTW...the Grand Ole Opry will have Ricky Scaggs and also Dailey and Vincent tonight on either Circle TV or facebook at 8 pm ET, if anybody cares for that type of music.
I saw Vince and Amy at our local concert hall years ago! Ricky Scaggs is too cool...I’ll check out FB...thx for the tip! 🤗
Music is amazing!
Vince Gill, ft Ricky Scaggs, Alison Krauss...totally feel the spirit in this song. 4fishylady , Doubled51 , jimeka , greaterexp ,
Thank you ✝️
I saw Allison Kraus when she 16 and was with Union Station at a little hole in the wall place in Urbana, Illinois. The leader of Union Station introduced her, saying that he thought she had a “nice little voice.” It wasn’t long after that when it became “Allison Kraus and Union Station!”
Wow...so cool...I think she has the sweetest voice ever!
I know that what taking picture and/or working with photoshop does to me or reading the NYT or le Monde.
I hope to see many of your pictures!
Going out into the countryside on my off road mobility scooter, with Razor my dog, and just sitting quiet watching the deers, hares run around, Razor running along side of me. Looking at wild flowers in the ditches, and just basically enjoying nature. Plus being with my grandsons. Good post. 🤗
sounds like heaven on earth.
😎👍👍
You have a gift for noticing the little things that matter.
Walking my Golden Retriever, Ginger! She is a tiny bit "older" and tires easily (like me) but we seem to encourage each other to keep going! 🐾
I love this. So many people here are blessed with wonderful pets that are a real blessing.
When my hubby is near...I also lose myself in music, photography, exercise, nature walks and I enjoy cleaning our home...before the stay-at-home orders...my kids and grandson brought unspeakable joy...above all, my faith...there’s no room for MS where love abounds!👨👩👧👦💕Great post!
Wonderful!
I pray your faith gives you great peace.
Donnie
Thank you, Donnie...same for you...gotta do our best to trust...John 16:33🙏🏻Susan
Good preaching from a good Holy Ghost filled man of God. Does it every time. Praise God. If that don’t do start a fire in you your wood is wet.😇😇😇.
Donnie
What a way with words you have!
That comes from worshiping in a Holiness Holy Ghost filled church😀😃. My father was a baptist preacher and my wife’s was a holiness preacher but died when she was 5 but she was still raised holiness. The first time I walked thru their doors I saw quickly that that was my kind of worship. Good preaching and loud music. I loved it.😇😇.
Donnie
You've got that right, Donnie!
Almost any activity I do, intellectual or physical, will take my mind off MS, so the busier/more actively engaged I am, the less I think about it.
Working in gardens @ home and at the Zoo. Cannot overheat though, or symptoms immediately take charge again.
Watching TV, chocolate, reading, chocolate, needlework, chocolate ...but primarily spending time with my granddaughter and her mom and dad. But since the pandemic began, they voluntarily put themselves on a “Don’t go the grandma’s” ban. ... so needless to say, the chocolate consumption has increased🤪.
Hi greaterexp 😊
What makes my MS "disappear" is watching comedies, action &romance movies. And PRAYING , of course!
God bless you
Lisa ❤
i agree with you ...the flowers do make everything go away ...well said to help with the cheers ...thank you ...
Praying. My family 🥰🥰❤❤. I'm so grateful to God for MY FAMILY.
i stay in my wheelchair close my eyes think of a waste basket and me crumbling a piece of paper and throwing it in the waste basket
after awhile whatever was happening seems to disappear
I so appreciate your ability to picture things.
I have a computer program called Microsoft Flight Simulator.
I can fly anywhere in the world. I enjoy going to different states and look at there Scenery from the air (Scenery is duplicate of actual Scenery with Computer Graphics that are off the charts). A lot of professional airline pilots use program for practice. You can make the simulator easy or professional mode which is for private and professional pilots.
A really good movie that totally takes my full mind, is clean, and has a happy ending, like “pelican brief, while you were sleeping, that one with Susan bullock that her identity was erased. Hard to find,, I want my mind to totally forget current life and be totally engrossed in something else. Like the movie with the runaway bus with Sandra bullock. Flowers used to do that but I go outside and see a few weeds around my flower bed or rock garden and start to pull a few and in 5 minutes I have muscle spasms in my arm rest of day, infuriating. Takes the joy away. But they are beautiful. Hubby is spraying for weeds to help me. So a good movie it is. And my memory is so poor I find I can watch movies again because I have forgotten the details😂😂😂😂 clean suspenseful movies.
Agape to you, one and all
Hubby and I enjoy happy movies mainly, but a little action and suspenses keep us interested, too. It’s amazing how caught up we can be if the story, script, and acting are good.
How could I forget spirituality? Of course, a deep prayer experience, an inspired message from a minister, an amazing epiphany from a scripture - that’s when I realize this all will be over in a “twinkling of an eye” and the greater part is behind me. Just a little while longer to travel this path of Pilgrims Progress. Thank you for the reminder. Love that old song, “ this world is not my home, I. Just a traveling through.” And as Corrie ten boom, who suffered so much in the concentration camps, said “Through it all, she leavened to trust in God and His Word.” Agape
Well said...amen!
watching and hearing my children and grandchildren get to connect with each other over zoom and what's app
My fur baby Hera and my bunnies! Also, walking into my beautiful backyard on a sunny day 🙏🏻
Talking with friends and family is a mind set changer for me. Being involved in conversation keeps the muscle and nerve issues at bay.
Good for you! I think it helps keep our minds sharp, too.
I started learning a new language (French). With Rosetta Stone, I get so angry at the pronunciation exercises (where I think I pronounce something properly but the program disagrees over and over again), I get so angry at Rosetta Stone, I forget all about my MS.
Ha! Frustration is finally good for something!
Reading has always taken me from my troubles, even before MS. I always say, "Some people drink, some do drugs. I read." There has always been an escape there.
Wish I could read- lacking concentration d/ t last MS excaserbatin.😞
But I can listen to audio books!
God bless you
Lisa❤
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