I have been doing a lot of thinking about everyone's comments and reading articles about brain lesions, and I realize now that the problem isn't the number of lesions. Its that for the last decade I've had a doctor that was very complacent and was not keeping track of things. When he retired last year I was sent to my new neurologist and he is totally different! From day one he ordered a new MRI and then called me in to compare the new to the others from the last decade. That's where he discovered the on-going increase in lesions every few years. We should have switched medications long ago.
Anyway, no need regretting the past. I'm thankful that I have my new doctor and a plan in place.
Let's keep on supporting one another here. It helps to know that we're not alone in this fight!
💕
Written by
Boxofchocolates
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Yes, regrets get you nowhere. Remember though this is a progressive disease, I would suggest the strongest medicine thsat you can handle. May I ask for french nougat instead of chocolate?
Thanks for posting about this, It's so important to find a doctor who is knowledgeable, listens to us, and educates us, among other things. I'm so glad you found a great doctor!
I am on my 5th medication in 5 years and am on my 3rd neurologist. That may seem extreme but nothing else was working and my last two neurologists were willing to let it slide. I am happy with my current neurologist who has been aggressively treating my MS.
It's so good that you now have a neurologist who is willing to put a new plan in place. We must remember that they work for us.
I'm glad your new neurologist is addressing things head on. It makes a huge difference doesn't it? I am still in the testing and eliminating phase but learning a lot from everyone. I'm still a little anxious to have an answer but it doesn't really matter. A name isn't going to change my symptoms. Hope things keep improving for you.
Yes, in the beginning it is all so confusing as we learn to navigate the disease and our individual symptoms. A good dr is always a VERY good thing to have.
So happy to hear that you have new Neurologist. A good doctor makes the total difference. It is all so confusing in the beginning but we learn as we go and from each other. Keep us updated on the new Neuro.
I have brain lesions with no change for years this is concerning! On Copaxone DMT because of low blood pressure issues; my Neurologist has been very reluctant and a little afraid to try me on others. Most importantly your new doctor is prescribing the best DMT for you! Thank you for sharing this with us, you are helping many.
Hi NeeC! No changes is wonderful news so copaxone is working. I had a slight new liason so my Dr. Hua change me from copaxone to aubagio. Happy to say no changes since change in medicine in almost three years! Blessings Cynthia
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Two things I learned about my MS during the move:
New to MS and learning.
Learning to be a \"Fall Risk!!\"
