Learning as I go

[Boxofchocolates]

I have been doing a lot of thinking about everyone's comments and reading articles about brain lesions, and I realize now that the problem isn't the number of lesions. Its that for the last decade I've had a doctor that was very complacent and was not keeping track of things. When he retired last year I was sent to my new neurologist and he is totally different! From day one he ordered a new MRI and then called me in to compare the new to the others from the last decade. That's where he discovered the on-going increase in lesions every few years. We should have switched medications long ago.

Anyway, no need regretting the past. I'm thankful that I have my new doctor and a plan in place.

Let's keep on supporting one another here. It helps to know that we're not alone in this fight!

💕

[RoyceNewton]

Yes, regrets get you nowhere. Remember though this is a progressive disease, I would suggest the strongest medicine thsat you can handle. May I ask for french nougat instead of chocolate?

[Boxofchocolates in reply to RoyceNewton]

French nougat sounds great! 😊

[rjoneslaw]

It’s great you was sent to a dr that knows what he’s doing. Here’s hoping for the best

[greaterexp]

Thanks for posting about this, It's so important to find a doctor who is knowledgeable, listens to us, and educates us, among other things. I'm so glad you found a great doctor!

[Wizardsmom]

I am on my 5th medication in 5 years and am on my 3rd neurologist. That may seem extreme but nothing else was working and my last two neurologists were willing to let it slide. I am happy with my current neurologist who has been aggressively treating my MS.

It's so good that you now have a neurologist who is willing to put a new plan in place. We must remember that they work for us.

[TexasLawman]

Glad you are here!

[Sassysmom]

I'm glad your new neurologist is addressing things head on. It makes a huge difference doesn't it? I am still in the testing and eliminating phase but learning a lot from everyone. I'm still a little anxious to have an answer but it doesn't really matter. A name isn't going to change my symptoms. Hope things keep improving for you.

[Boxofchocolates in reply to Sassysmom]

Thank you and best wishes to you with all the testing.

[Amore55]

I have a new neuro I see Wed. He is young and very progressive from all I have heard. Good luck with your newfound success! Love, Kelly xx

[Boxofchocolates in reply to Amore55]

Thank you, Kelly!

[pamgarner]

It is soo confusing at first,so much info.good dr is the 1st step.

[bxrmom in reply to pamgarner]

Yes, in the beginning it is all so confusing as we learn to navigate the disease and our individual symptoms. A good dr is always a VERY good thing to have.

[bxrmom]

So happy to hear that you have new Neurologist. A good doctor makes the total difference. It is all so confusing in the beginning but we learn as we go and from each other. Keep us updated on the new Neuro.

Jessie

[Boxofchocolates in reply to bxrmom]

Thanks Jesse, I will.

[twooldcrows]

so glad you found a doctor that is helping you like they are suppose to do....you can keep on going with some new meds...just enjoy your life ...

[lbenmaor]

I'm glad you have a new Doctor.

Leslie

[stepsforNeeC]

I have brain lesions with no change for years this is concerning! On Copaxone DMT because of low blood pressure issues; my Neurologist has been very reluctant and a little afraid to try me on others. Most importantly your new doctor is prescribing the best DMT for you! Thank you for sharing this with us, you are helping many.

Blessings

NeeC

[Boxofchocolates in reply to stepsforNeeC]

Thank you, NeeC. It's encouraging to have this new MS family here as I go through all of this!

[CynthiaS in reply to stepsforNeeC]

Hi NeeC! No changes is wonderful news so copaxone is working. I had a slight new liason so my Dr. Hua change me from copaxone to aubagio. Happy to say no changes since change in medicine in almost three years! Blessings Cynthia

[kdali]

Yes, regrets and anger are unless. Glad you’re on the right path now!

[stepsforNeeC]

Good to hear, and I'm happy about the three year stability with only minimal changes - God is Good!

blessings

NeeC