Seriously?

[TexasLawman]

Why would people want to be diagnosed with MS? I don’t understand. I’m still hoping a doctor says that they have made a mistake.

[Royjr]

I think when it comes to other illnesses like heart issues, cancers or blood diseases, MS diagnosis is a disease that by itself will not take you out. This is just my opinion.

[Doubled51]

Don’t we all.😋😋.

Donnie

[txcg152]

I’m not sure why anyone would want to have MS, it’s very unpredictable & anything could/would happen within a second! Atleast that’s what has happened with me ugh!!! 🤠

[Peruzzot]

When i was told that I definitely have MS. I wasn't happy that I have it...I was happy to finally have an answer to "What the hell is wrong with me?" After nearly 5 years of getting jerked around. All I was getting were wishy washy answers in an effort to spare my feelings....All they managed to do was tick me off. I require straight answers without any fluff.

[TexasLawman in reply to Peruzzot]

Yes, it was nice to know I wasn’t crazy!

[carolek572 CommunityAmbassador in reply to TexasLawman]

Crazy is another diagnosis, and sadly, another doctor

[CynthiaS in reply to Peruzzot]

AMEN. xox

[Peruzzot in reply to CynthiaS]

🤗😎

[IFwczs in reply to Peruzzot]

Yes, 5 years of hearing "There is nothing wrong with you" here as well. Until my former PCP told me they had a patient in his 20s who used to fall all the time, like me. He had a brain tumor, and I was convinced I had it too. Boy, was I happy I didn't have a brain tumor when I got diagnosed with MS!

[Peruzzot in reply to IFwczs]

I was having issues with vertigo, cognitive and memory issues. The vertigo I noticed...no choice. For a long time I was oblivious to the cognitive and memory issues but everyone who had known me for awhile noticed them. One doctor I talked to blew me off and was really condescending about it to. I reported him to the hospital commander. Another doctor hooked me up to a machine that tracks brain activity and told me I had something leaking in my brain. Yeah that can't be anything good. I still don't know what was leaking because I shut down hearing that word. I should've had someone with me for that appointment. I got the ms diagnosis a few days after that. People at work told me that they thought I might have a brain tumor and were relieved that it was only MS...Even though some had no idea what MS was.

[IFwczs in reply to Peruzzot]

Let's be grateful for no brain tumor! A neurologist whose last name is that of a famous serial killer said I didn't have any problems with balance. He said he had some patients who did, but it could wasn't me. And now I need assistance to walk.

[CalfeeChick CommunityAmbassador in reply to Peruzzot]

Wow, sorry you had to wait so long for a definitive diagnosis. When I first was numb and doctors were giving me disease possibilities, that scared the crap out of me. I was relieved to get the MS diagnosis. Then

I could start researching it and doing what I needed to do to have my best possible life. Of course I was saddened, but decided to be my best possible life😊

[Jesmcd2 CommunityAmbassador]

No one wants to be dxed with MS TexasLawman no one wants to have to play the waiting game for that DX either. It's a scary place to be.

So our friends come here looking for answers to questions they don't know yet. For comfort and support. Living in limbo is no fun, and we understand that.🤗💕🌠

[TexasLawman in reply to Jesmcd2]

I do too. 5 years and many specialist to get my Dx so I do understand.

[twooldcrows]

it is because for how many years did they tell you that there wasn't anything wrong even had one doctor tell me to see a head doctor if i couldn't discuss what was happening in my life that i couldn't talk about it /////

[falalalala]

Before my diagnosis, I just wanted answers. No matter what it was.

[Fancy1959]

Thinking back to the first time someone told me it look like I had MS , it was a little old surgeon who was looking at the x-ray of my neck . He was staring at the large lesion I had on neck close to my C3 vertebrae. The old surgeon looks at me and he blatantly tells me. ," At this point you had better pray you have MS.." Well, you guessed it., I broke down into a quiet, sobbing, gut-wrenching cry. What's a way to learn that you have MS. I believe I would say he had. the bedside manners of a oink oink oink! You get the gist of what I'm saying! Sorry, I didn't think this took. Because when I was doing this yesterday, it must have disappeared off my screen three times. and I got fed up and quit. Fancy.

[mrsmike9 in reply to Fancy1959]

I hope you reported that doctor! What a jerk!

[Neworleanslady]

I was happy to finally hear that it was something for which there was a treatment

[BettysMom]

Because the alternatives would be so much worse. For instance, you go blind over the period of a few days. If it's MS it will likely resolve completely, and MS is a treatable disease. If the cause is a tumor at the chiasm of the optic nerves you are probably going to permanently lose your vision and perhaps your life. Or you develop weakness in your legs. Isn't MS a whole lot better than having a malignant spinal cord tumor or ALS?

[IFwczs in reply to BettysMom]

Absolutely agree! Yes, my former boss compared me to his dad who died of ALS.

[Alison2003]

I was diagnosed two year ago at the grand old age of 59 after going through 15 years of seeing doctors and other health professionals all because of one leg dragging when walking.I had a slipped disc and trapped nerve round about the 15 mark but everyone i saw said no this is not the cause anyway went to see a great physio who knew what he was talking about and hey Preston there i was with ms.still in denial at times but just have to get on with it.have been told from neurologist that because I started late? there is a possibility things may stay the same .fingers crossed only problem i now feel more tired.Thank you all for letting me go on a bit it's good to know in a nice way that there are people out there who understand.Good luck to you all and blessings from the UK.

[janetb1968 in reply to Alison2003]

Hi honey also in the U.K. as well, I was diagnosed in 2017 at 49. I was a ward sister in cancer surgery with 28 years experience. I’ll admit I get terribly frustrated at times but it’s not the Big C! Hope ur ok and as well as u can be xxxx ❤️

[IFwczs in reply to janetb1968]

My dad died at 39 of pancreatic cancer. I was overjoyed when I got tested and found out I don't have the gene. At least MS is not lethal.

[janetb1968 in reply to IFwczs]

Very true honey, I’ve dealt with some awful deaths due to cancer xxxx ❤️

[pamgarner]

it is good not to be running around in circles and have a diagnosis ,now I can proceed in a straight line.you know the shortest route between point a and point b is a straight line,hopefully a cure

[jorrell]

Because I had suffered under an undiagnosed health issue for 10 years. When I was diagnosed, I jumped for joy that now they knew what treatment I needed. That meant an end to the relapsing/remitting symptoms where each relapse took a little more away from me.

[cljones]

I know I wasn't happy I had MS but was happy to finally know what was happening with my body. They for years had been telling me it was just bulging discs in my back. I knew it had to be more than that. When the physical therapist said it has to be something else I thanked him greatly. Finally someone hears me.

[Corran731]

I wasn’t happy but finally having a diagnosis was definitely a relief after years of not knowing what was wrong.

[sashaming1]

I understand that finally getting the diagnosis is a relief after not knowing the cause of your symptoms and going from Doctor to Doctor without a definite conclusion. I don't fully understand it, but it's Human nature apparently.

[Bluesinger]

I was glad to be diagnosed. From the time I was a child I would drop thing and fall for no reason. I had vision issues. No one knew what was wrong. When I finally got my diagnosis I didn't feel like I was crazy. Many doctors thought I was a hypocondriac. I was a big relief.