Got my mavenclad today : While I wait the... - My MSAA Community

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Got my mavenclad today

Turtlepie profile image
29 Replies

While I wait the appeal process I will be able to start my medicine thanks to the drug company. I will take my first dose tomorrow morning. Because of my weight I will be taking 8 pills over the next 5 days 2 pills for 3 days and last 2 days just 1 pill. Next month I will take 7 pills over a 5 day period. I will let you all know how I do with this medication.

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Turtlepie profile image
Turtlepie
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29 Replies
greaterexp profile image
greaterexp

I wish you the best!

Turtlepie profile image
Turtlepie in reply to greaterexp

Thank you

rjoneslaw profile image
rjoneslaw

CONGRADS!!!!!!!!!!!

I hope it works out for u

Turtlepie profile image
Turtlepie in reply to rjoneslaw

Thank you fingers crossed and prayers going up

mm1527mm profile image
mm1527mm

That's great! Hope it goes well for you keep us posted! Prayers and blessings

Turtlepie profile image
Turtlepie in reply to mm1527mm

Thank you. I will do my best to give updates

Peruzzot profile image
Peruzzot

That's awesome!! Hopefully it gets you feeling and working better quick. Keep us posted on how you do with this new DMT.

Turtlepie profile image
Turtlepie in reply to Peruzzot

I sure will. I am being hopeful

Amore55 profile image
Amore55

I should know, but what kind of MS does this med treat? Thanks! Good luck. Love, Kelly

Turtlepie profile image
Turtlepie in reply to Amore55

I have rrms but I think it is also spms. Not positive on that but I am hopeful that it we be helpful. Thank you

Timeflies5 profile image
Timeflies5

Hey Turtlepie...so happy for you...hope it works well! 🙏🏻❤️

Turtlepie profile image
Turtlepie in reply to Timeflies5

Thank you

Juleigh21 profile image
Juleigh21

Best of luck!! Please keep us posted on how you do on this medication.

Turtlepie profile image
Turtlepie in reply to Juleigh21

Thank you I will do my best to inform everyone

mrsmike9 profile image
mrsmike9

I sure hope it helps you!

Turtlepie profile image
Turtlepie in reply to mrsmike9

Thank you

jimeka profile image
jimeka

I am so pleased that everything has worked out for you. I also hope that this dmt works well for. Looking forward to hearing positive results for it, Blessings Jimeka 🤗

Turtlepie profile image
Turtlepie in reply to jimeka

Thank you so much. I will be posting how I do

bavery207 profile image
bavery207

Turtlepie wishing you well.

Turtlepie profile image
Turtlepie in reply to bavery207

Thank you

bxrmom profile image
bxrmom

Glad the company is going to help you while you go through the appeals process. Good luck with it and keep us posted when you can.

Jessie

Turtlepie profile image
Turtlepie in reply to bxrmom

The company is great. I will keep everyone updated

hairbrain4 profile image
hairbrain4

So glad you were able to get started on your meds. I'm a firm believer in DMT's and the sooner the better after diagnosis. I have had to wait a couple of months when changing over from one DMT to the next waiting on insurance to make their decision. It made me feel like I was jumping out of an airplane without a parachute. Good luck to you, hope it works well for you.

Turtlepie profile image
Turtlepie in reply to hairbrain4

I was diagnosed possibly having MS in 1993 there was no medication then. I got a definite diagnosis in 2002 and that's when I started Copaxone was on it over 16 years. Had to stop that because of side effects being a problem this is the 4th medicine since I stopped Copaxone. Thank you I will be posting updates on how I am doing. Insurance can really make things difficult

hairbrain4 profile image
hairbrain4 in reply to Turtlepie

Insurance companies make me furious. How can a person sitting at a desk with no medical training make decisions about my healthcare, that's what doctors are for.

Turtlepie profile image
Turtlepie in reply to hairbrain4

I am with you on that

twooldcrows profile image
twooldcrows

well it sounds like it is starting ..that is great ..hope all of the problems to away soon ...let us know how it all goes ....good luck ...love and much happiness in the future for all of this ....

Turtlepie profile image
Turtlepie in reply to twooldcrows

Day 1 was OK just a bad taste in my mouth day 2 today has been no different so far. Thank you and I hope that this will work for me and for any one else that did take it is taking it and will take it

rjoneslaw profile image
rjoneslaw

good luck

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