The 2 faces of MS: Your future was so... - My MSAA Community

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The 2 faces of MS

TexasLawman profile image
12 Replies

Your future was so bright. I knew you were going places. And I was coming with you. When your dreams came true, so did mine.

You were my best friend. We were one. You knew all my darkest secrets and told no one. We were so happy.

Then something happened. I changed. Gradually I became too tired to join in activities we once enjoyed. We stopped running in the park and going to the gym. I began walking with a limp and slurring my words.

When we looked in the mirror, you barely recognized me. I would sleep all day and isolating myself at night. The energetic person you knew all your life was replaced by a Monster.

So we sought help. MRI. Blood test. Spinal tap. The diagnosis was in. The symptoms were all too familiar to the neurologist. And his words altered everything. That’s when I knew it was over. The results confirmed our ending. You were gone. I was gone.

understand change happens, but not this. I just didn’t want to believe it. I never thought you would ever leave me. Something like this happens to other people. Not us. Not me.

Just the other day we were having the time of our life. Now I can't find you. You vanished. I didn’t even get to say goodbye. One day you were here and then you were gone. It’s hard to believe you’re really gone. I need you. I need me.

In my heart, I know what I’m looking for may never return. But I can’t give up the possibility of reuniting. It’s just so difficult to function without you. My daily activities became impossible chores. And random tingling and numbness grow to be a norm.

They say hope is in the air, so I hold my breath wishing to see you. Wishing to feel your energy. Wishing that you would come back and make me whole again.

At night, visions of you appear in my dreams. When I wake you’re always gone. Those hallucinations haunt me. They make me feel like I’m dying a thousand times over.

Then out of the blue, the other day, you came back for a visit. I could sense your presence that morning. So, I made plans. We walked around the mall and went shopping without getting tired. We ate lunch and saw a movie with friends. It was so much fun. Just like old times.

But maybe we did too much. Perhaps I pushed too hard. Once we got back home, I could feel you slipping away. I tried to hold on but I lost my grip on you.

Suddenly, I was all alone. Back wall walking around my apartment. Blaming myself for losing you again. I wanted to cry so much that day and drown in my own tears.

I began compartmentalizing my existence. Feeling helpless, as I became someone I didn’t recognize. A mere shadow of my former self. Dwelling on my past. Fighting bouts of fatigue and pain.

Exhausted, I laid motionless on my couch. No doubt an exacerbation was creeping up. I was tormented by the anguish of being abandoned. Deceived by my own body.

Wearing the anguish of grief. Longing to restore the smile of blissful peace. Trying my best to be one complete person while navigating life with the two faces of multiple sclerosis.

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TexasLawman profile image
TexasLawman
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12 Replies
Tracelr profile image
Tracelr

So have you written a book awesome writing

Timeflies5 profile image
Timeflies5

Thank you for this post, Texas...it’s touched my heart. 🕊

jimeka profile image
jimeka

If this is truth not fiction I am truly sorry, but if it is fiction it is very well written. 😊

Peruzzot profile image
Peruzzot

Very well written. Thanks for sharing.

twooldcrows profile image
twooldcrows

this is what it looks like when we get down on ourselves for what we use to have ...yes there are days that they come back and it is great fun...we just have to go slow at first not to crash later but even going slow sometimes doesn't help but we just keep going and take the med's that help slow it all down ...if what you are taking isn't helping talk to the doctor maybe she or he will get you on something else ...if this is a just the start of a book on your life with MS it is so telling of what is going on a day and how they can change from day to day ...other wise i am worried about your depression...talk to the doctor ...take each day as it comes and work at enjoying life any way you can and get on some better drugs to help you get a better days in your future...

TexasLawman profile image
TexasLawman in reply totwooldcrows

But I am not depressed, nor am I going to forget my past. I have done a lot that I am proud of and although I can no longer do those things, there are other things I do that also makes me proud. Thank you though, but I have primary progressive MS and there isn't anything I can take.

Amore55 profile image
Amore55

Amazing to read my words coming out of someone else’s experience. Great writing, well expressed and sad for all of us that know it. Thank you. Love, Kelly

Tracelr profile image
Tracelr

Brought tears as read

Hugs

pamgarner profile image
pamgarner

amen,you said it all!sometimes I search for the words, you nailed it!

mrsmike9 profile image
mrsmike9

Oh my. SO well written! I need to save these words, these emotions. Have you thought about a book? You are incredibly talented!

TexasLawman profile image
TexasLawman

I have written a book about my life and all that I have done. I currently have copies at DHS and the Texas State Attorney Generals office to receive permission to try to find a publisher. Thanks for the encouragement.

carolek572 profile image
carolek572CommunityAmbassador in reply toTexasLawman

You do have a touching way with your words, TexasLawman Please let me know when you have published your book because I would love to read it. Thank you for this post :-D

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