Tremors: Hi Does anyone take a medication... - My MSAA Community

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Tremors

Tracelr profile image
13 Replies

Hi

Does anyone take a medication that helps with your tremors could you tell me what it is if it works

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Tracelr profile image
Tracelr
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13 Replies
Amore55 profile image
Amore55

Hey! I was having terrible tremors for about 12 years. Bad major motion and fine movements. So I have been on clonazepam, a benzo, drugs I hate and think are dangerous, but it was all that worked. WELL, I just had to get my mental health, antidepressant meds tweaked. They were aghast at one I had been on for ... you guessed it 12 years. It has a major side effect of TREMORS! I got right off it and my tremors are virtually gone. But it takes about 3 months to safely get off the med I used to treat them. What a mess! The new med they gave me is Cymbalta and it has helped to drop my pain level from a daily 8-9 to a 2-3!!

Sorry to ramble. Bottom line, clonazepam worked great for me, but thoroughly discuss with dr. Good luck. Love, Kelly

Tracelr profile image
Tracelr in reply toAmore55

Thank You so much.. for sharing with me I use a walker in my house wheel chair when I leave the house or some one one has to hold me up to walk.has been like that since 2012 diagnosed in 2011.

Had tremors since 2013 on my right side body in mornings out of bed in 2016 before I got a walker

To see me get out of bed first 5 mins

Looked as if I where in a mosh pit

I’m sure as I didn’t see my self lol

Fortunately that doesn’t happen anymore I don’t know why .I’m glad.

Now since 2015 I turn over in bed and my whole body violently shakes Going seizure mode I’m not having a seizure so my whole body shakes

I shake with all movement

It’s getting Ridiculous

No cooking getting or getting anything for my self

Think Didn’t have the tremors maybe I can cook and get water for myself or anything else

Maybe drive again quit driving

In 2017 due to the sudden violentl tremors in arm that just randomly occur with out notice even 😝

That thankfully has stoped to .

I take Copaxone and blood pressure pill. Which I don’t like taking the BP pill.hate the daily injection.

Looking for another M S med

I read a lot of natural health

Always have whole life ..

I smoke marijuana.. for no reason

But to keep my head from feeling

Intoxicated. So in short iam leery

Of ALL medication .

These Tremors gosh today I couldn’t stand till my 4 th try

Never happened before like Omg holding on to the walker violently shaking I turned around on the couch and got up on my knees

Stood from there with out the hippie Dippie shakes..

Went outside to smoke is Nice balmy 29 .. came in the house went to lay down to rest then tears flowed So I started praying

Please take these tremors away .

Weirdest thing on my left arm started hurting like a pin was in it and it was being twisted that I don’t know I’m gonna have a heart attack but I didn’t I’m still here but this went on for four days and then it Them left hand it hurts so bad in the morning all these Episodes only lasted about five minutesI don’t know why and it don’t hurt now no pain I don’t know what the heck it was but I have the same kind of pain on my right hip now But it’s been on there for about six months and my hip

Any way now Rambling on about my aches and pains with MS yay 😀

Have a great day

Amore55 profile image
Amore55 in reply toTracelr

I get those same kind of pains. It often feels like there is a wasp in my clothes stinging me! I even have gotten undressed just to check when I know there is no wasp! 😂 I am so sad you are getting slammed so hard with this Monster. Anytime you want to chat, feel free to private message me, okay? Have a good day. Love, Kelly

Tracelr profile image
Tracelr in reply toAmore55

Yea I have those sensations and crawling sensations.

Little burn sensations NowI ignore most of them because I know it’s just MS .

Angelchef80 profile image
Angelchef80

Sometimes my leg would uncontrollably shake, tremor in hands, it was very unstable when I stood up. I did have pain in the top half of my legs. Spasticity was the problem, the dr gave me baclofen and it has tremendously.

Angelchef80 profile image
Angelchef80 in reply toAngelchef80

Sorry, has worked tremendously

leking1 profile image
leking1

I take Baclofen as well for the tremors. They do help me.

Tracelr profile image
Tracelr in reply toleking1

They put me on baclofen when they diagnosed me they said for spasticity

didnt know what that was I was shaking tiny bit at my diagnosis

I needed help walking .

To take 3 times a day I fell a sleeep all day everyday on my couch

After a year of

that I quit taking it I like to live my life wide awake .

My husband was telling people I have narcolepsy Iam like I do ?

Yeah your falling a sleep everywhere . Falling asleep All gone.

And I had insomnia to and for some reason quit the baclofen and don’t have insomnia anymore

Tracelr profile image
Tracelr in reply toleking1

Docs so different doctor never mentioned baclofen for tremors.

There helping me giving med for Parkinson’s. My request

I’m sure I’ll try it .. see if it works it did not.

That must be scary for you when it happens...hoping you find some relief.

Tracelr profile image
Tracelr in reply toGoldilockssearching

Not scary just annoying

Wizardsmom profile image
Wizardsmom

I take Primidone for tremors. It is an old seizure drug. I have tremors in my head and right arm and hand. The Primidone helps.

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