Fighting the Battle of Ms

[Simply1216]

Living With Ms I found out in 2003 I lost eyesight in one of my eyes over time it came back it's a Daily battle I try my best to be happy everyday sometimes it's hard

[jimeka]

Hi and welcome to the forum. You are correct, ms is a daily battle, but we have to stay positive, which is hard, but I try to find something everyday to smile about. It’s amazing what one smile can do, even if only for a minute. Blessings Jimeka 🤗

[Simply1216]

Th Everyone thank you for the welcome Ms has effected us all in different ways I can remember before I exactly was told it was Ms ~~I think back on how I use to trip well walking and tired and could not move few years back I fell and Me working in the health field told my cousin Just take me home I will just elevate my foot last year doing Pt--- I asked the therapist to do an X-Ray turns out I had been walking on my foot for almost 2years a fracture so the out me in an aircast-- I wasn't able to get up on my foot Then now I have the drop foot I have been working for the longest with Bioness to get The L300 that helps lift the foot I have found Ms society or Ms foundation helps with many things for Us living with Ms

[Kenu]

That’s how my MS started was loosing site overnight in my right eye. Yes it came back over six months but still have problems off and on with it. Been twenty five years, stay strong. 👍🙏😉 Ken 🐾🐾

[Simply1216]

Yes I'm staying Strong 16 years for me and Dr after I got married my husband now he has passed on I think it played a major role some ppl can't I handle it it birthday happened I have changed what I eat food plays a mat round in Ms too

[Simply1216]

It good to have other who live with it to share and help one another lifted up prayers to everyone

[Cutefreckles72]

I understand. It is a daily battle. And I just got started. 💪🏽

[greaterexp]

I appreciate your post. Welcome to this "little" family. We're glad you found us and already know about so many helpful resources.

[rjoneslaw]

Welcome

[Simply1216]

Ms society they got me a lift chair which helps so much sometimes get up from sitting I get still I'm so thankful to be part of this family🙏

[Simply1216]

I have been on all the Ms medicines Now I"m on tefidera The one that worked the best for me was Oh I forget the name Dr now but I had to stop because of the PML

[Jesmcd2 CommunityAmbassador]

Hi Simply1216 welcome! We are so happy to have you! Sounds like you have been on quite the roller coaster ride of MS! I'm glad the Tecfidera is working for you!

Do you have any hobbies that you like to do? Are you ready for the holidays? 🤗💕⛄

[Simply1216]

Thank you Well I try to say active I read a lot holidays are kinda hard I lost my dad and step Mother I know they wouldn't want me to be down I'm ready Birthday Monday no plan just Thankful to see another Year 🙏👐

[Sandydemop in reply to Simply1216]

Happy belated birthday

[Simply1216 in reply to Sandydemop]

Thank you for the Birthday wishes it's just Been so cold up here

[Simply1216]

Yes staying Strong we have to own Ms and not let it own Us

[CraigS]

Welcome to the forum. My feeling is that it’s not important to be happy every day. That seems an impossible goal, but what I find is that finding ways to cope with the sadness is much more useful. People without disease are not happy everyday, so don’t dwell on it. I’ve found that having something to do to occupy your mind is a very useful tool. I hope you’ll stay with us and continue to discuss the things that are going on with you. There are so many caring individuals here to bounce ideas off of. You’ve come to the right place.

Craig

[pamgarner]

I found the best way for me to pick myself out of one of the many levels of depression,is to do something kind for someone else.this year I am handing out candy canes to everyone I see,the lady in front of me in a check out line,the cashiers ,the mother trying to settle crying children,or whomever,it brings a smile to their face after the look of confusion

[Simply1216]

Yes that's a blessing spread the Joy and happiness

[carolek572 CommunityAmbassador]

Welcome to this forum, Simply1216 Yes, attitude is everything. Keep Smiling, and I look forward to hearing more from you!

[sashaming1]

I'm happy to hear that your eyesight came back! We do what we can do to the best of our ability - no matter what it is on that particular day.

[Simply1216]

Thank you yes and each day is subject to change it such a blessing to have this family

[2littletime]

Hi Simply1216..My ms adventure started similar to yours almost 20 years ago. Seemed like I had a cloud moving across my left eye. Saw ophthalmologist & could only read the giant letter at the top of the chart! Vision was at 20/400. Told to see primary dr. & so my journey began. I saw 7 different doctors before getting a diagnosis! My neuro-ophthalmologist looked at my MRI & knew exactly my problem. (Optic Neuritis & Vasculitis) still seeing same dr all this time every 6 months or so. My vision is back as best as it can be (20/40 with glasses) I can settle for that!! Find a good team is doctors & stick to it...ms is a rollercoaster ride. Hold on & stay positive. Sending prayers & hugs 😇

[MarkUpnorth]

Yes M.S. is a daily battle! But it can be fun too! I remember my worst relapse...."The Broken Vertical Hold". You have to be as old as I am to remember the old TV's, back in the days when "color" was a new thing in tv's! Well back then, any older TV had problems from time to time with the vertical hold, and the screen would start scrolling up over and over on it's own. Quick short term fix...walk over and hit the TV on the top of the box and it would stop, for a bit, till it started right up again and again. Time for the TV repair man! But anyway, I remember the relapse where my whole world looked like a broken vertical hold tv set, except banging on top of MY head did not seem to stop it from rolling! Needless to say, I could not drive that way. So I had a personal chauffeur (my wife) drive me from customer to customer so I could give estimates.

The stories, like my one leg not really working....kept walking into the sides of buildings. Only felt okay in this one neighborhood, full of drunks and drug addicts, where I fit right in waling into the sides of buildings, but wearing dress pants, neatly ironed white shirt and tie??? But, the way I walked....

I could spend all day telling stories that M.S. has provided me. So, it's an experience!!! Try and enjoy it?!?!

P.S., once you learn all the little tricks, it's not so hard. Like be sure to write down why you're going down to the basement or garage before you go, so you don't have to stop and wonder when you get there, why you're even there. Try that 2 - 3 times. Note in hand, yeah that's a lot easier! LOL!

[Simply1216]

Thank you for the Birthday wishes life is truly a blessing

[Simply1216]

I hope everyone is doing well ! the weather really get to me

[Lhallgrigsby]

This mark's my 37th year w/MS. Every day is a challenge and I go with flow.

[Simply1216]

Hi Mark I can truly understand my goal is I trying to build up my strength in my legs Ms is a struggle each day subject to change I keep my faith and pray a lot One time I was so depressed with Ms I had to get out of that rabbit 🐇hole once we get in there it's hard to get of

[Simply1216]

Goodmorning Everyone I hope and everyone is doing well during Covid 19 and staying safe as we can