New to MS and new here

[Bear10wd3r]

I was diagnosed October 2018. I have balance issues and I started walking with a cane in April. I don't know what to expect. I know everyone is different. This is so new to me and would like to know if I could get some insight of what is to come.

[Kenu]

Welcome to our crazy group of MSers. Nice to meet you under the circumstances 👍. All questions are open here. If you haven’t you should contact MSAA and get on the”One on One “ program, they are tremendously helpful with medication, funding, and you have your own nurse that gets to know you and what you’re needs are👍 🙏😉. Ken 🐾🐾😎

[johnMSAA Partner in reply to Kenu]

Welcome to our online Community as well, Bear10wd3r !

As Kenu mentioned, our MSAA Helpline can help you find resources for the newly diagnosed. While we don't offer direct funding or medical care, we can connect you with local resources in your area or other national "one to one" programs offered by pharma and other organizations. We also have other programs and services that may assist you, both in person and online.

Contact our Client Services Helpline for more info:

[phone], extension 154

Email [e-mail]

- John, MSAA

[SueAB]

Bear10wd3r, Welcome! It is very hard for anyone to tell you what to expect since each of us writes our own book. I was DX in 1987 and am still kickin'! I try to get plenty of exercise, even though some days is harder than others. I ride my adult trike, lift weights and swim laps and I really feel that has kept me walking.

[falalalala in reply to SueAB]

Me too.

[Kenu]

Also MS Manager is a great app to keep track of daily diary 📔 for symptoms, meds, and information you can use to refer with doctor so you don’t forget things. It is quick and easy to do and you can look back to see what’s going on and maybe what is setting things off like a flare up. Ken 🐾🐾

[CynthiaS]

Welcome home Bear10wd3r!! Sorry we meet due to MS. You are never alone. We are all unique and may have similar symptoms. Check out previous topics and history on this site. Blessings to you and all. My name is Cynthia

[rjoneslaw]

Welcome you will find support here.

[RoyceNewton]

G'day and welcome to the family. Are my new sister or brother I can not tell from your picture. Nice bird I have not seen a budgie in ages. On this site somewhere there are posts for newly diagnosed (newbies) they may not answer every question that you have but they should answer some. Any that you may miss please ask. Either way nice to meet you.

I am Royce By The Way a male

[Bear10wd3r in reply to RoyceNewton]

Thank you!!

My name is Ryan and I'm a female. =)

[RoyceNewton in reply to Bear10wd3r]

g'day Ryan nice to meet you.

[Msbeauty01]

Hi Bear10wd3r

My best advice is don't give up. I too was diagnosed in 2018 in July. I walk with a rollator walker for to balance issues. I recently switched to a new Nuroligist for to feeling like my original one never listened and didn't have my best interest at heart. The new Nuroligist it's excellent. I learned more about my illness in one visit thanI did in a year with the other DR. My medication has changed and it's been established that I have Progressive MS instead of Relapsing. He prescribed some medicine to try to help me with my walking. Just tender to keep notes of any new symptoms or concerns you have and take them to your Nuroligist. We will be just fine. Welcome to the group.

[Weldon60]

Welcome to the group. The first few years with MS can be scary. You don't know what to expect. I was diagnosed in 1991, so I have had it a while, but I have not had a lot of attaches. My biggest issues is with my vision and getting tired, but I have been able to continue to work and basically do what I want and need to do. I hope yours won't be any worse than mine.

[Texandyroe]

Welcome! You came to the right place to get insight, support and answers.

[IFwczs]

Welcome! I hate sounding like a broken record, but if you haven't already, please read the book by Ann Boroch "Healing Multiple Sclerosis.". I found out about it here and wish I had learned about it sooner.

[bxrmom]

Welcome to this wonderful and caring group Bear10wd3r Look forward to getting to know you. I'm Jessie and I was dxed in 2006 with RRMS. I have been on Copaxone (both of them), and now Tecfidera and doing well. I will see ANOTHER new neuro in Nov as the one I have been seeing for the last year was 'only temporary' which I didn't find out until my last appt. This will be my 7th Neuro in 13 years.

[Beckylp54]

Welcome Bear10wd3r

MS is scarey but you are strong 💪

My motto is Never Give Up!

I was diagnosed over 10 years ago started with a severe exascerbation. It's been a long hard road but you can do it! I'm on my third DMT Rebif. It's working well for me so far. The side effects the first year were brutal! Only gets bad now and then. Was on Copaxone for 7 years daily injections. Soooo glad injections now are 3 times a week.

Anyways really great people in this forum! I truely appreciate their words of wisdom especially from experience. And there's LOTS OF EXPERIENCE with everyone here to help you.

Blessings to you❤becky