working the limits... imposed by my MS - My MSAA Community

My MSAA Community

9,257 members21,034 posts

working the limits... imposed by my MS

anaishunter profile image
3 Replies

I'm one of the lucky one in that MS has not really changed my life(yet). So far, it has only imposed new limits on what I can or can't do and what I also need to do. And I tested these a bit too much last week.

In general, I need to be active. If I don't move enough then some of the symptoms (tingling, electricity in my left leg, tripping) start to show up. But if I do too much, then I get exhausted, get pain in my legs once I sit quiet to rest, and I get very susceptible to fatigue like having to take a 3-4 hour nap on the weekend.

I had friends stay over on Friday for the solstice as we went together to a traditional yoga celebration of 108 sun salutations at sunset (no worries, I did not do 108). But the stress (even the good one, i.e. excitement) started to weigh on me in mid-week, then the yoga session, then the lack of sleep from changing bed, and more stress from having to entertain my friends... Just learning.

I call this working the limits. I somehow believe that I need to keep working these and pushing back so that my MS does not gain any ground. It's like warfare, even if I don't like the analogy.

Written by
anaishunter profile image
anaishunter
To view profiles and participate in discussions please or .
3 Replies
RoyceNewton profile image
RoyceNewton

that is a very good idea, perhaps demptying a constantly refilling bucket of water, instead of warfare. A little less depressing I might think

Juleigh21 profile image
Juleigh21

“Working the limits” what a great way of defining it. I balance everything I do every single day. If you’re not familiar with the “spoon theory “, you might want to google it. Take care and don’t push the limits😆.

carolek572 profile image
carolek572CommunityAmbassador

It is a double edge sword, trying to find enough to challenge you, physically, but not too much that you find yourself struggling. I applaud you for your efforts though, and encourage you so that you do not give up, or give in. I too, hate the analogy of fighting 'ms'.

Keep Smiling,

Carole :-D

Not what you're looking for?

You may also like...

MS and things to avoid for the newly diagnosed.

Hello chat room friends and family. This is a post that I created over a year ago. It has such...

Have you had a lumbar puncture to confirm MS? Or just the symptoms in different times/places where they tell you it’s MS?

I’m asking as much as I get they tell me it’s MS occasionally I get a feeling of “what if it’s...

The Many Hidden Faces of MS.

Most people who have had MS for any length of time have dealt with one or more of the faces of MS....

The thing about MS is.....

Ya never know!?! You wake up in the morning and your stilll tired... Is it MS? Or are you just...

Today: the good & the bad (learning the new limits)

Being out of a job, I have a lot of time, besides looking for a job, to write on this forum and...