Yeah that’s a bummer: Who else has a brain... - My MSAA Community

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Yeah that’s a bummer

kris1973 profile image
12 Replies

Who else has a brain lesion in the pons? Explains a lot. -Kris

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kris1973 profile image
kris1973
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12 Replies
rjoneslaw profile image
rjoneslaw

That’s a good question I will be asking mu neurologist that at my next visit

Peruzzot profile image
Peruzzot

I have 2 in the back of my brain 1 small one on the left and recently added a whole bunch of little bitty ones in a concentrated area on the right side.

greaterexp profile image
greaterexp

I'm sorry. Have you noticed symptoms associated with that lesion?

kris1973 profile image
kris1973 in reply togreaterexp

greaterexp Yes for a while- but they changed and have been constant the last 6 months or so. That’s why we did the MRI. While it’s nice to understand why I am having these issues...it’s a bummer knowing this is the new norm for me.

OKgal profile image
OKgal

🙋‍♀️🙋‍♀️🙋‍♀️ I do, I do. Unsure of the number, but more than one. 😔

agate profile image
agate

I was found to have a lesion in the pons when I was diagnosed with MS.

carolek572 profile image
carolek572CommunityAmbassador

Can you tell me how this affect you? I have never been that specific when asking where my lesions have appeared. I just know that many of mine were found in the spinal cord. A few in the brain as well, I think.

kris1973 profile image
kris1973 in reply tocarolek572

carolek572 All of my senses are off (taste etc). The left side of my face/tongue stay numb. Lots of eye & face twitching on that side. I used to tell my neuro that my brain was having WiFi issues. The last 6 months its more like my brain has been disconnected (seriously...)😂 It’s hard to explain but here goes...when I am listening...my brain substitutes words “that sound like” the word that’s being said - adopted/abducted (I heard my daughters friend say her parents abducted her from China😂). I didn’t understand until the following day that she hadn’t been abducted...it’s like that part of my brain is missing. Same thing happens when trying to read...it either scrambles the letters to form a new word or puts in any word it wants. By the 3rd word I forget what the 1st 2 words said & go back to the beginning. Gets so frustrating & overwhelming I stop. Same thing with writing - the word I mean to write & the one written are usually completely different. Makes communication really hard - even responding to a text. I gave up on grammar and proofing but I want to make sure I meant the words I typed...but having trouble reading what I typed gets me frustrated so I delete the response.

carolek572 profile image
carolek572CommunityAmbassador in reply tokris1973

Wow. All that stuff would drive me nuts. I now know what you say that you have brain lesions in the pons. Thank you for explaining it to me.

kris1973 profile image
kris1973 in reply tocarolek572

carolek572 You are welcome:) Sorry for rambling...I’ve become my own biggest pet peave! Oh well🤣 Merry Christmas! -Kris

carolek572 profile image
carolek572CommunityAmbassador in reply tokris1973

Merry Christmas to you and your loved ones as well :-D

sashaming1 profile image
sashaming1

I looked on the internet for the "Pons" in the brain. And, after reading, it looks like the "Pons" controls lots of things - many that could be trouble if not controlled properly. Hope you're doing well.

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