Gilenya Pill Treatment: My neurologist is... - My MSAA Community

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Gilenya Pill Treatment

Eveliz profile image
4 Replies

My neurologist is thinking of putting me on Gilenya within the next month. I’ve read all of the possible side effects of the medication & of course now I am somewhat petrified 😬to take this medication. Is anyone on this medication & what was ur experience?

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Eveliz profile image
Eveliz
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4 Replies
Iona60 profile image
Iona60

I was in gilenya for 1 1/2 years. Unfortunately, it wasn't effective for me. But, I have a friend that had been on it for 7 years and had only had one exacerbation. I took the precautions of having a skin and eye check every 4 months. It's easy to take and well tolerated by most.

barbaradonnahoe profile image
barbaradonnahoe in reply to Iona60

I thought that drug only came out about 1-2 years ago. The PML side effect scares me.

Lilith08 profile image
Lilith08 in reply to barbaradonnahoe

Looks like it was approved in 2010. (Agreed with PML scare)

Fattius profile image
Fattius

Hasn't helped my situation but this monster has no reigns. Try, try again

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