I cannot Believe i was undiagnosed for almost 11 yrs!

[Jazzyinco]

I've been Undiagnosed for 11 Yrs. Now!

Im extemley angered @ All Salud Clinics!! An emergency door hit my right side of my temporal lobe hard 3 times, afterwards i felt drunken dizzy all the time.

Then i think I had my first L. Sign in bed in 10-2,007! & my back & L. Leg was hurting badly, so went to Salud, Longmon’t clinic. They did nothing for me! Said it was all in my head & dismissed me! I had to get a cane to walk! No M.R.I.’s nothing!!

I did see the x-ray the workman’s comp. Doc took! & knowing what i now know (almost being a doc. W/all the research i do daily!) i did have lesions in my spine!!!

SO, RRMS in a relapse til about 2010! i almost died on my couch, when i was denied S.S.I. by the ALJ in Denvet!

So, i had to go back to work dizzy & i kinda remissioned, i did have some sick (m.s.) days & kept loosing jobs due to dizziness, shakiness, irritablity, & fatigue. Til about end of 2012 i just kept going downhill!!! I’d drp & brake glasses & pots! Even residents of assisted living center.

fino, in 2013,2014 i think i drpped over $1,000 wrth of water+champagne glasses crates at my banq. Job, kept loosing or having to quit jobs til 2015!! I could no longer work at all!!! I was reluctant to see any1 up here @ the Salud cuz of my last experience in Longmont!!

So, i became desparte & i caved! I needed my State A.N.D. cuz i applied for S.S. disability! I did try the Salud up here & again was very diappointed! ((BUNCH OF QUACKS!!)) I had my caregiver drive me down to Loveland for a 2nd opinion to Sumrise Health Clinic, to see PA. Jennifer Smith.

Finally, in Sept. 2017, i had my first brkthrough! She askd for x-ray which led me down the path for a true diagnoses!!

Then M.R.I w/out contrast. & then finally Kathi Patterson N.P. neuro whom ordered the m.r.i. w/ contrast up here.

Then she said definate M.S. & After seeing a bunch of people (docs) up here who did the range of motion test, they beleaf its Progressed!!

Now, i’ll go see my final M.D. Neuro. 5-4 & i’m nervous, cuz i need S.S.DI. for now cuz of income is sooo low!! & i have to move!!! I am very greatful for my caregiver as i’ve almost fallen many times! Which is scary!!

I hate this disease, we still dn’t get along! I’m trying to cope day by day but it’s very hard too!! W/ all pains, dizziness & sick feeling!!🙀😒😳

This disease is a 😈👿👺

[jimeka]

Hi and welcome to the real world of ms. There is nothing physically pleasant about having ms, except this site, where we all understand. There is someone usually on here who can relate to what you have been through, or what you are going through. So vent away. I hope that you get sorted soon, keep in touch, blessings Jimeka 🦋 🍫

[Jazzyinco in reply to jimeka]

Thanks for welcome, im glad i found this forum! 👍😍

[Jazzyinco in reply to jimeka]

🌷🌹👍thanks for warrm welcome, i love this new family here!

[Jesmcd2 CommunityAmbassador]

Hi Jazzyinco having fun yet? 😒 I hear you about your frustration's. And I am sorry that your going thru them.

Have you tried mymsaa.org for help with your ssdi? Give them a call Monday. [phone] ext 154. ☺

I hope you have a restful day day today. If not come back and vent away, or come back anyway!

Have you tried Dramamine for your dizziness? *I'm not a dr!* but it's OTC and helps with my vertigo.

🤗

J🌠

[CalfeeChick CommunityAmbassador in reply to Jesmcd2]

Thanks Jes, good info!

[Jazzyinco in reply to Jesmcd2]

Thanks so much, i'll call them 2morrow.mon. stuttering away. Lol! 😍👍

[Jazzyinco in reply to Jesmcd2]

Thanks so much, i will stutter call them! Lil😍

[Jesmcd2 CommunityAmbassador in reply to Jazzyinco]

Jazzyinco if you don' feel comfortable talking with them, they also have a "chat" box that you can just type,talk to someone😊

mymsaa.org/msaa-help/mschat/

J🌠

[Morllyn]

Welcome to the group.

I was told that it was “all in my head” at first also. I think that a lot of people were told that. Glad that someone finally is taking your symptoms seriously.

Hope everything goes well.

[Jazzyinco in reply to Morllyn]

Thanks for warm welcome. I do too hope everything goes well.

[CalfeeChick CommunityAmbassador]

Jazzyinco Sorry about all your upset and frustration. And now that you have a diagnosis, you have come to the right spot. 99.9% of us have MS or love someone with MS. Most of us can relate to what you are going through, I was in denial for months. Then found this site and found a new family! Unfortunately, when you go to the doctor, most of them do not think of MS as a diagnosis. It's a very hard to diagnose disease. Nothing about it is as easy as looking in your ear and saying, "Oh, you have an ear infection!" Now that you have a diagnosis. You can take ahold of it, research it. Decide how you are going to live your life! You have MS, Don't let it have you!! Please continue to visit us, read along, make comments and ask questions. We are sharing our experiences, helping each other. We aren't Doctors, but definitely there is allot of information on MSAA (HealthUnlocked.) We are here for you and for each other.

[Jazzyinco in reply to CalfeeChick]

Thank you so much for all warm welcomes! I am so glad i found this forum, new family... This is great! Happy. 🌹👍😍

[drnikki]

I am so sorry you had to go through all of that. It amazes me how often doctors still minimize what their patients tell them. You sound like a fighter and that will help with all you're going through. Best of luck..

"MS is something I have NOT who I am"

[Jazzyinco in reply to drnikki]

Thanks dr. Nikki.. I have heard many of us were dismissed... Wow! Sad..

[Jazzyinco in reply to drnikki]

Yep, i will not let it own me! Nor will i own it! Thanks for that! 🌹🌷💐👍😍