Do you have a hard time with consistency... - My MSAA Community

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Do you have a hard time with consistency? Is anyone on Ocervcus can tell me about their story?

Kellyb1976 profile image
Kellyb1976
β€’17 Replies

Hi I've been diagnosed with MS since 2011. Been on Copaxone first then on Tecfideria its hard for me to be consistent with taking my medicineπŸ’‰ πŸ’Š so my doctor recommended me to change to Ocervcus since its more consistent then rembering to take my pill or shot. It was hard for me to take it the same time everyday. I was wondering if anyone has stories of having a hard time being consistent about taking their meds? Also any stories about what they experienced with Ocervcus?

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Kellyb1976 profile image
Kellyb1976
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17 Replies
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ssdw1958 profile image
ssdw1958

Kelly b1976 the way in which i take medicines are I have them in the pill box I have morning and evening l also have my cell phone alarm clock set for the morning and evening I have it set at 7 am then a couple more times to make sure I take them / then I do the same in the evening.

Now the Ocrevus you know you have to go to the hospital or doctors office to take that medicine. I haven’t had any problems with that medicine.

Good luck.

Kellyb1976 profile image
Kellyb1976β€’ in reply tossdw1958

I have a pill box too. Its set up for morning and evenings it helps but that when I'm home. When I go to work I put it in a ziplock pill bag and take it on my break once in a while I might forget on my break then I take it as soon as I remember but then I have to wait so many hours for the next time to take it.

Diva1976 profile image
Diva1976

I too use a pill box like ssdw1958. I also uses mango health app. Your phone chirps when it is time to take meds. It is a nice app that tells you all about your meds once you input them. You actually earn points for takings your meds on time. Ocrevus is nice because its one less med to worry about. Once you get it. You're good with your MS med for 6 months. That is what I like about it!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Kellyb1976 welcome. I take copaxone 3xs a wk and I'm getting kinda bad at it.

I have been on it for 3 yrs. Mon, Wed, Fri, or, Tues, thus, sat. 😞

I used to have an alarm for it, but can't get it back. So now I keep my shots for the week out to remember.

Hope it helps you more than it helps meπŸ˜…

J🌠

Iona60 profile image
Iona60β€’ in reply toJesmcd2

When I was on copaxone, the daily one was easier to remember than the 3x.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toIona60

It's not like I don't 'remember' I just get busy. πŸ˜… There's shopping to be done, cleaning, tv, more tv. Here, here, clean, tv,here, ya know, walk the dog, days gone!

πŸ˜’πŸ˜‚πŸ€£πŸ˜…πŸ˜ž

J🌠

Iona60 profile image
Iona60β€’ in reply toJesmcd2

Great to know that you still have your marbles if you remember.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toIona60

Wait, what marbles..... I gotta remember them to? Iona60 πŸ˜ŸπŸ™ˆπŸ˜‚

Nope not doing it! πŸ˜’πŸ€£πŸ˜…

You can do it! 🀣🀣

J🌠

Iona60 profile image
Iona60β€’ in reply toJesmcd2

Sush, or we'll put you in charge of the imaginary spreadsheet. Can't even begin to imagine how someone could do it now with so many members in the site.

Kellyb1976 profile image
Kellyb1976

Thank you for replying jesmcd2 and Diva1976. I'l look into the app you were talking about. Its nice to know there is others that are going thru the same as me.

cindyrn68 profile image
cindyrn68

Hi! I had difficulty taking my meds until I put a med timer on my phone. Much better now!

Kellyb1976 profile image
Kellyb1976

When I forget I take it as soon as I can but if I'm at work and either I forget it at home or take it late. I take the pill asp but still have to wait so many hours till I have to take my next one. So its like I skippd a dose. πŸ˜•πŸ˜”

Kellyb1976 profile image
Kellyb1976

My doctor would like me to change my med. to Ocervcus an infusion every 6 months. To keep a consistent in my system. Sounds good but nervous about it.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toKellyb1976

We Have quite a few family here that are on ocrevus. Kellyb1976 😊 I'm sure they would be happy to put your fears to rest!

Right off hand, ssdw1958 , Allen5280 , Fancy1959 just to name a few. 😊

J🌠

Kellyb1976 profile image
Kellyb1976β€’ in reply toJesmcd2

Thank you Jesmcd2☺

Kellyb1976 profile image
Kellyb1976

What was the reason you had to wait 8 weeks before getting on Ocervcus?

CloverPrincess profile image
CloverPrincess

I have taken Ocrevus for the past year and I really like it even though there are some immediate side effects there are no long-term side effects for me. But I think I think it’s important for people to know is that wears off after three or four months and you start feeling bad again so you basically have three or four months of complete relief every six months. Taking medicine on time can be difficult and Ocrevus is a really great solution for that. Even if the infusion is a little painful and it takes only three or four months for the meds wear off more or less.

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