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luvhair profile image
22 Replies

I love this site ty everyone i refered another gal to it also....well today is most diff a down day this beast good n bad...but its sooo hard deal with these down days..whats if u have problems with sleeping is everyone using?

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luvhair profile image
luvhair
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22 Replies
CalfeeChick profile image
CalfeeChickCommunityAmbassador

luvhair I have a prescription for Lorazepam, (generic Ativan) I can take 1 or 2 about 30 minutes before I want to be asleep. They help. Sometimes, (and my doctor knows) I will add a 5mg Melatonin, or maybe just a half. Melatonin is available over the counter. I get the chewable berry flavored. Hope you can get some rest. I am aware of some others here that use cannabis, or a CBD product like the gummy bears. Hope you can get some rest dear girl! 😴💤😴😴😴

luvhair profile image
luvhair in reply toCalfeeChick

Yea cbd oil was paessed in nebr then they yanked it i heard tht they now approved it idk i havr to check it out for sure as really they were gonna make cbd a weed charge so hopefully its passed heard it helps alot

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toluvhair

I know you can buy CBD oil on Amazon. I believe they can send it anywhere. I have been told it comes in different strengths. It’s all legal in California but some counties forbid it. Like our county. My husband has a medical card and has to go to the next county to purchase. He uses a “Vape” pen. No smell, which makes me happy 😃

Midgey_Midge06 profile image
Midgey_Midge06

I used to never have issues sleeping until MS. now insomnia and i battle like the hatfields and macoys. Its awful

I did the sleep study thing and it came back useless cuz if u cant sleep - they cant collect data.

My neuro has me on Ambien CR. regular Ambien lasts for 2 hours. It will put u to sleep but not keep u asleep. Ur body has to do that on its own. I really believe i have lesions on the part of my brain that controls sleep - cuz i had a head injury that set off my MS - so my brain doesnt know how to sleep anymore.

I also take baclofen at nite, melatonin, tizadine, klonopin and primidone. I avoid caffeine except for one cup of coffee in the morning and drink plain water the rest of the day.

It took me 4 years to finally get here but i know enjoy the benefits of a good nights sleep and its awesome. Work closely with ur doc and u will find ur magic mix. Sleep really is a beautiful thing

luvhair profile image
luvhair in reply toMidgey_Midge06

Yep i could always sleep could take tht the hold bottle of ambien joke..a client told me long time ago bput midnite i bout it just because but they had 2 differnt kinds one was also for pain amazing..went to buy more last week the places here only carry regular one its ok the pain onr is midnite pm its all natural lavendar n stuff cant find it anywere here n my town found on amazon gonna get it..and you dont feel crappy next day!!!

Midgey_Midge06 profile image
Midgey_Midge06 in reply toluvhair

Ya the Ambien extended release makes u groggy the next day - cuz its keeping ur brain asleep all nite but i take Nuvigil to stay awake so it all evens out.

I miss the days all i needed was coffee to wake up and i feel asleep like a normal person by 10pm 😴

luvhair profile image
luvhair in reply toMidgey_Midge06

Yea i cant stand it only.sleep 2 hours on tht crap..then not evrn worth it feel like shit next day

Midgey_Midge06 profile image
Midgey_Midge06 in reply toluvhair

The ambien extended release? It shud keep u asleep cuz it pumps out the med every hour or so. Its like being in a beautiful coma....

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toMidgey_Midge06

I thought they pulled Ambiem because of side affects. I tried it and started sleep walking.

Midgey_Midge06 profile image
Midgey_Midge06 in reply toCalfeeChick

No u can still get it. I have to get it thru my neurologist and to get it from insurance is like pulling teeth but its still out there

luvhair profile image
luvhair in reply toMidgey_Midge06

Tht figures

luvhair profile image
luvhair in reply toCalfeeChick

No its still out there n nebr anyway its useless in my opinion..hate it dont sleep any better n feel like a got wasted the nite before..its horrible thts just my opinion

kris1973 profile image
kris1973

Trazodone 50-100 mg works for me most nights. I’ve only been on it for maybe 6 months? Others have said it stopped working for them after a while. I’ll take every single second of sleep my body will allow. It also helps with my anxiety & allows me to concentrate...just a little! -Kris

luvhair profile image
luvhair in reply tokris1973

Oh uea forgot bout tht mabe i talk to them about tht ty..

luvhair profile image
luvhair in reply tokris1973

Good idea

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply tokris1973

My hubby gets the trazodone through the VA. He only uses it once in a while. He has no sleep problems. I’m jealous.

luvhair profile image
luvhair in reply toCalfeeChick

Ues imma check into getting trazadonr used to get it long time ago..thts great idea

luvhair profile image
luvhair

Has anyone do any essential oils..i do lot of lavender n epilepticus but my therapist ask me if ive heard of black seeed oil i checked it out online sounds good..anyone done this if so what brand

Midgey_Midge06 profile image
Midgey_Midge06 in reply toluvhair

I love the oils but they never did squat for me.

luvhair profile image
luvhair in reply toMidgey_Midge06

Yea i guess what i was told lots of the oils are fake ive trried some of those i friend of mine owns a bath kinda store with real oils ..i get one she makes called goodnight it real works..ive tried a few other she has and really work..she does ship u ever want to try..tht goodnite just awesome. Let me know i will tell u name number..ok we are n nebraska !!

Midgey_Midge06 profile image
Midgey_Midge06 in reply toluvhair

I do the lavender every nite just cuz. It doesnt make me sleep but does smell great!

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toMidgey_Midge06

Never did anything for me. I had a friend insist on massaging different oils into different parts of my body.. I just needed a hot shower to get it all off of me. I agree the Lavender is a nice calming fragrance. I used it for my mom in law to help calm her Alzheimer's when she got anxious.

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