MRI Results are in: I had my MRI's done... - My MSAA Community

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MRI Results are in

Bygonelines profile image
β€’12 Replies

I had my MRI's done last Tuesday and got the results yesterday. My MRI's are stable but I am showing some brain shrinkage. Not happy with that, but I am happy there are no new lesions and the lesions I have are not showing as active.

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Bygonelines profile image
Bygonelines
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12 Replies
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jimeka profile image
jimeka

Bygonelines are you pleased with your treatment? What type of ms do you have and what medication are you using.? How did the you tube competition go? Blessings Jimeka πŸ¦‹ 🌈

Bygonelines profile image
Bygonelinesβ€’ in reply tojimeka

I am pleased with my treatment, though it is unconventional. I am currently off all MS drugs. I felt way worse and had too many negative side effects and no positive effects from them. I have a great neurologist and PA that I work with. They are not overly happy with my choice to go off drugs but are willing to support me, especially since my MRI's are stable. My neurologst said that I am now getting to the age where she would consider taking me off drugs anyway because I am stable. I currently do some chair yoga and the MS Gym. In addition I am taking supplements and using essential oils. My disability is getting worse but I am feeling better than I have in a couple of years. I don't have anywhere near as much pain as I was having so for me that is a win. I am also working on changing my eating habits. Making small changes so I can hopefully stick to them. So for now anyway, I will continue on as I have been.

Is that age related shrinkage?

Bygonelines profile image
Bygonelinesβ€’ in reply to

I don't think it is. I was reading the report and the statement made by the radiologist is that I have brain shrinkage "consistent with MS". So I took that to mean it is more MS related than age related though at 54 yrs old it is also probably partly age related.

greaterexp profile image
greaterexp

I’m thrilled to hear your good news, but am sorry about the shrinkage. I, too, wonder if it is related solely to MS. Does your doctor have a theory? Have you read anything about alpha lipoeic acid?

punterstein profile image
punterstein

I know that brain shrinkage does happen as part of the aging process. I don't know how old you are butt my husband (age 70) had an MRI and it did show brain shrinkage and the Dr. was not at all alarmed. He said that is normal as we grow older (he does NOT have MS)

Karen-x profile image
Karen-x

I also had some brain shrnkage, neuro said typical for me age. Congrats on being stable!

kdali profile image
kdali

Congrats on the stable scan! πŸŽ‰ Brain shrinkage is normal as you age, but there are lots of studies out there (exercise, diet, meditation) showing volume gains. I would find it upsetting also.

bxrmom profile image
bxrmom

Bygonelines Congrats on the great results and no new activity!!

Jessie

Doubled51 profile image
Doubled51

Congratulations on no new lesions. I am always happy that they still find that I still have a brain on my MRIs. Lol.

Donnie

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

It's always Great need to hear when lesions are stable!πŸŽ‰ Bygonelines I don't remember if I asked before or not, but have you always been off DMT's? 😊

J πŸŒ πŸ‘»

Bygonelines profile image
Bygonelinesβ€’ in reply toJesmcd2

No, I have been on Copaxone, Tecfidera, and I tried Avonex once. I had lot's of migraines, pain, and with Avonex I had the flu like symptoms for a week. Not eligible for Tysabri and some of the others because of allergies and I felt the dangers out weighed the benefits.

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