bad episodes in past and medicines for involuntarily movement. would you share your opinion or experience?

[Daisuki51]

Hello. Nice to meet you everyone! I was diagnosed in 2003. However physically and mentally , starting from last a couple of years I just couldn't take anything anymore. I had big embarrassing and scary episodes both at home and in public due to my physical and mental issues. My region has also expanded to spine a little (one region is the sever one) but I've been doing OK for for now.

I walk funny. I took Botox twice. First time my left wrist numb and I couldn't write letters properly. Second time I've been having pain on my left collarbone. I had been Yoga and Cardio at home but I've not been able to do it since then.

Another thing is my twitching. Starting from last two years I started twitching due to my meditation or my MS symptom. (My doctor didn't give me a certain answer.) I just started taking a couple weeks ago medicine Tetrabenazin for the treatment of my involuntarily movement. For example It is not fun to keep moving involuntarily while sitting at the meeting I enjoy being there.

I was wondering if you could share your experience. Thank you for reading my post and have a nice week!

[Iona60]

Hi Daisuki51 . So sorry you are experiencing invountary movements. I only have this with spasticity in my right leg, usually at night, after I've been sitting in the same place for a long time. I'm sure that this is frustrating and embarrassing. Hoping your new med will work for you.

[Morllyn]

Daisuki51 , I get twitching in my legs and hands sometime but, I am not sure if it is the disease or one of my medications.

[WAshingtongirl]

I don't have the same symptoms you do, but it is very nice to meet you and learn more about you, Daisuki51 . Welcome! 💕

[Daisuki51]

Thank you everyone for all the messages. They encouraged me lot. I am kindda moving at this moment but I think I am OK. Thank you!