Como vivir con la esclerosis múltiple y que inventen la cura para dicha enfermedad

[aliceam8334]

Quiero hacer nuevas amistades y compartir experiencias

[Morllyn]

I had this translated and think she is looking for friends.

Me encantaría pero no hablo español. Tenía que conseguirlo traducido.

[erash]

aliceam8334

Tambien. Quiero y espero la cura!

No hablo Espanol muy bien.

Pero necesito el grupo por personas hablando Espanol.

Lo siento. Mi Espanolno no es muy bueno. Deseo mejor...

johnMSAA is there a place that non-English speaking members can share support?

[plosed06]

Estoy de acuerdo con used. Mi enfermedad es PPMS. En ingles significa primary progressive. Cual es la suya? Ya no puedo tener empleo.

[Morllyn in reply to plosed06]

Siento que tenga MS, pero me alegro de que se haya unido a nuestro grupo. Creo que tengo MS secundaria progresiva. ¿Tienes un buen médico? Espero que el traductor esté traduciendo esto correctamente.

[plosed06 in reply to Morllyn]

No se preocupe. Yo no necesita traductor. He estudiado espanol por varios anos. Si, tengo un buen medico. Muy simpatico y listo. El trabaja en la Universidad de Pennsylvania en Filadelfia. Donde vive usted?

[Morllyn in reply to plosed06]

Vivo en Knoxville Tennessee. ¿De dónde eres originalmente, si no te importa que te lo pregunte? ¿Ha tenido EM por mucho tiempo?

[plosed06 in reply to Morllyn]

Originalmente, naci en Nueva York. Ahora, vivo in Filadelfia. Mis abuelos eran de Puerto Rico.

He tenido EM hace un ano, segun el medico. Pero yo sufri con problemas por tres anos. Tres medicos no tenian ninguna idea sobre mis problemas. Entonces fui a la Universidad de Pennsylvania. El medico alli supo la respuesta.

[Morllyn in reply to plosed06]

La mayoría de las personas en este sitio saben lo que es tener síntomas durante años y no recibir el diagnóstico hasta que o bien tenía suficientes síntomas que hizo más fácil de diagnosticar o encontraron el médico adecuado que sabía lo que estaba pasando. ¿Hablas ingles?

[plosed06 in reply to Morllyn]

Si, hablo ingles. Como puedes darte cuenta, no hablo espanol muy bien.

[Morllyn in reply to plosed06]

¿Su lengua materna no es el español? Si no, lo siento! ¡Pensé que era español! Hablo inglés y he estado usando el traductor de Google para traducir mi inglés al español. También puede traducirlo a otro idioma. Déjeme saber cuál es más fácil.

[plosed06 in reply to Morllyn]

De veras, prefiero el ingles. El caso es que solo me papa es de habla espanol. Tuve que apprender el espanol en el colegio.

[Morllyn in reply to plosed06]

Then we will speak English.

I hope that your MS has not effected you too badly. It can really cause me a lot of pain and worry at times.

[plosed06 in reply to Morllyn]

I know what you mean. I have nerve pain all the time in my feet, legs, and under my ribs. I can walk only with a walker.

[Morllyn in reply to plosed06]

I am sorry that you have pain, any symptoms that others cannot see or feel are hard for them to understand and empathize with.

I have had MS for almost 40 years. Had numbness and pain on entire left side, odd feelings of water dripping on back of leg and lots of fatigue. Last September I had an attack, the first in almost 20 years. That one left me with sporadic muscle cramps all over both sides, weird vibrating feeling all over. The cramps are daily, mostly in legs but arms, hands and toes at times. The vibrations have just recently started and feels like I am sitting on some machine or something. It doesn't hurt, kind of funny.

[plosed06 in reply to Morllyn]

Wow. Just when I thought my condition was bad, I meet someone who is having worse time than me. I can't imagine having MS for 40 years. Very sorry. You must have been very young when you got it. Right now I am trying to find a work from home job. I have been looking since September. So far, no luck.

[Morllyn in reply to plosed06]

It can be very hard to find any kind of job now days and if you have any medical conditions it is much harder. I hope you find something you like and can handle.

I have had MS for a long time but I have still had a good life.

[plosed06 in reply to Morllyn]

Glad to hear it. Next I am going to try agency that helps disabled people to find work. Appointment in two weeks.

[Morllyn in reply to plosed06]

I hope that goes well.

Take care of yourself and do not let yourself get run down.

I have enjoyed talking with you.

[plosed06 in reply to Morllyn]

Thanks. I have also enjoyed talking with you. Just curious, are you Latina?

[Morllyn in reply to plosed06]

No, not at all!

[kaitlynmsaa]

aliceam8334 ¡Bienvenido a nuestra comunidad amable! Estamos felices de que estés aquí para compartir tus experiencias. Esperamos que esta comunidad sirva como un buen recurso para ti. -Kaitlyn, MSAA

[CalfeeChick CommunityAmbassador]

Thank you Morilyn and Kaitlynmsaa for welcoming our new friend. I can make out about every 6th word. Muy bueno alicem8334

[Fancy1959]

Moriln, thanks for taking charge. The language barrier was notsmething many of us except you, erash. and kaitlynmsaa Administrator was able to truly overcome. This again proving that together we are stronger! Fancy1959.