Well, I finally met with a nuerologist and will be starting on medication soon. I am looking at two drugs at the moment (copaxone and aubagio). Does anyone have experience or thoughts on either of these medications? Any advice would be greatly appreciated.
Ohhhh....happy Friday!
I really don't know personally about these medicine except one is an injectable and the other is an oral medicine. Do your research and ask plenty of questions.
Sadieschafer I was on Copaxone for 10 years. The daily, then 3x weekly shots were a pain, but I took great comfort in knowing that this drug did not make me immunocompromised. I am on Gilenya now. The pill is easy and I try not to think about the fact that I am at a much higher risk or cancer, especially skin cancer, and macular edema.
The only side affects of Copaxone seem to be injection site reactions. It isn't as effective as the other drugs, but it kept me stable for 10 years. I hope to one day go back on it.
I was having trouble on Gilenya at first, and Aubagio was the next drug that the Neuro was going to suggest for me.
He says most people tolerate Aubagio very well.
Do your research, so you can ask your questions.
I was on copaxone...shots a pain but otherwise few side effects
I was on copaxone from 2004 until 2015. Have been on Aubagio ever since and 2 MRI's have been completed since starting on Aubagio. No new lesions showing up and no activity. Copaxone was doing good but was getting tired of the shots.
Copaxone for me for 9 years so far... 40mg 3 times a week and have few issues. This is after Betaseron for 8+ years until a shot-gone-wrong put me in surgery with necopic tissue under my skin on my right thigh. Always had problems with Betaseron, but it was the only one available in 1994... The meds have become SO MUCH BETTER!
MonSter since 1986--you're lucky to be making these decisions NOW when you have CHOICES!!!
Hi Sadieschafer , I'm in my 7th week of taking Aubagio. It's easy and convenient to take with it being in the form of a tablet. I did notice one of the side-effects when I first started taking it and that was an increased appetite, however due to having really bad "MS Hug" symptoms, I can't eat much even if I try. One of the other side-effects my Neurologist talked to me about was hair thinning. I've been battling thinning hair for at least the past 5 years (Dermatologist diagnosed the cause as stress related) and haven't noticed it getting worse.
This is the only DMT I've tried as I was only diagnosed in November. I haven't noticed any difference in my symptoms even with a 5 day course of high dose steroids 3 weeks ago.
When I saw my MS Nurse on Tuesday I asked her when the Neurologist would see me again and she told me, usually around 6 months after starting treatment unless she thinks I should be seen or I want to be seen sooner. I was fine with that but 2 days later I received a letter with an appointment to be seen in March.
Continue with your research and make the best decision for yourself 😊
Happy Saturday Sadieschafer l take Copaxon 3xs a wk. Besides it being a pain haha (pun intended) 😅 l haven't had a problem with it. Are you in the States? Cause l know with the Copaxon they will send out a nurse to teach you how to use the auto injector. They also have a toll free number that you can call, to get help and they can send you, a neck cooling wrap, chapstick, suntan lotion, and stuff.😅 Oh yeah they will send you alcohol wipes.
I don't know anything about Aubagio, sry.
Ask alot of questions!! Make notes to ask your Neuro, put the most important ones on the top☺
Jes🌠
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