Hi there, introducing myself...

[mmguy]

I was diagnosed with multiple myeloma after a persistent pain in a my leg. I started treatment with VAD chemo, but recently switched to Bortezomib and dexamethasone...

Would be nice to read about similar MM journeys!

[alexaundria44]

Hi mmguy. How long ago were you diagnosed, and what do you feel are the results of the chemo and meds you are currently taking...do you think they are helping much...are you doing any research of your own. I was diagnosed by an Oncologist here in Canada almost 3 months ago because of some on-going symptoms I'd had for nearly 5 years, plus more that developed recently, and am more than a little confused about my family doctor saying my MM wasn't the 'dangerous kind', whatever that means! the Oncologist wants to put me on Statins for my 'bad' arteries and high blood pressure, but without the enzyme...Q10 I think it's called...because that upsets a whole whack of other things in your body and that's not good because she didn't prescribe that, so I tore up the prescription for the statins and it will have to wait until I see her again in a few weeks with all the new questions that have come up...which you don't think of at first because it's all too new. She also gave me a prescription for high doses of Vitamin D, which seems kind of contrary to the many hours I spend outside all year round, and which raises your calcium levels when taken with hydrochlorothiazide which is not good either. Either way, chemo and all this upsets your system even further. I don't get why when you first get some of these ailments you aren't sent to dieticians and given the information you need to fix the problems instead of just disguising the symptoms with Band-Aid treatments. It certainly seems that way sometimes. Anyway, sounds like you had some kind of bone cancer in your leg, and my Oncologist did say mine was related to bone marrow, but they aren't considering a transplant currently and I've been given no prognosis or anything. Guess I better get asking some serious questions! Good luck with your MM....did you read the other post from the fellow who's been through the mill with chemo etc....

Warm hugs and keep us posted on how things are going for you!

[mcints2]

Welcome mmguy!

We at Patient Power strive to connect patients, and the people who love them, with the knowledge, confidence and hope to live well with cancers like myeloma, through news and information, patient stories and, now, this peer-to-peer community here on HealthUnlocked.

Connect with others! Ask questions to gain support from people who have been where you have been, and share your experiences to help others. Whether you have MGUS, smoldering, newly diagnosed or relapsed refractory myeloma, your perspective is valuable here.

Welcome to a community of powerful myeloma patients. I look forward to getting to know you!

Sheryl McIntire

Patient Power

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