Other rashes

[JennaShi]

Here is picture of a couple rashes I get pretty much daily. I think the top goes with the other post I had made. But still a good representation of what happens after eating something, I think, that my body is sensitive too. Anyone else get these kind of rashes? Have you associated them with something?

[Boudica1]

Have you been to the GP yet if not it may be a good idea.

Also if you think it's something that you've been eating then tell them that as well.

In the meantime keep photo evidence and a symptom diary of anything else as well and what you have been eating, using like perfume, soap, washing detergent and so on as it may well be an allergy. But only a doctor and or a dermatologist can do the checks for a diagnosis.

X

[JennaShi in reply to Boudica1]

Hi thank you for your reply, have been to the doctor and showed them the photos. Hopefully we will hear back soon. Thank you, will try to be more consistent.

[Boudica1 in reply to JennaShi]

I know how hard it can be which is why we need to keep a diary of everything not only helps the doctors but sometimes we can see a pattern in what is happening, when and if it may be linked to something we have eaten, used, worn or come into contact with so we can eliminate certain things. Doctors can test to see if it is an allergy or something else.

Good luck with finding out. X

[JennaShi in reply to Boudica1]

I most definitely agree with you. Used to be AIP and eliminated alot of foods but fell iff the boat after even restricted foods didnt stop my stomach from discomfort. Thank you, and to you as well!

[Boudica1 in reply to JennaShi]

I have to see a dermatologist as everything the GPs prescribed didn't work.

The first dermatologist I saw said it was hive's and put me on the strongest dose of antihistamines it didn't work so I had a biopsy and the antihistamines were raised to double the maximum dose still didn't work.

Result of biopsy came back and was diagnosed with Urticarial Vasculitis. Later that year they also diagnosed Jessners Lymphocytic infiltration.

The top specialist dermatologist put me on Hydroxychloroquine as it was clearly not an allergy. This past 3 years I've been having 3 monthly appointments with the dermatologist and check ups with rheumatologist but most of the rashes are under some sort of control.

Take care and don't be put off or brushed off either by junior doctors who have not come across some of the rarer skin problems. Some of them I would not trust with acne.

X

[JennaShi in reply to Boudica1]

Wow, I guess your history is a good example of the difference in doctor’s opinions and experiences. So glad you were able to figure out what is going on! I most definitely agree, it’s quite easy to be pushed off by doctors in general, but those are the ones we dont want to work with anyway 🤦🏼‍♀️😄.

[Saassii]

That's flushing and yes associated with eating something that is causing mast cell degranulation. When that happens you get excess histamine. Histamine excess causes flushing as well as a host of other symptoms. The question is more, why are you reacting so strongly now to foods? Are you being exposed to something in your environment that's increasing your body burden until you're symptomatic while eating?

[JennaShi in reply to Saassii]

Thank you! Is this a normal thing then? This would not be called mast cell activation but simply the process due to foods/ eventually will go away? I’m not sure if I know the answer to your question. I can say that I have been reactivated EBV and my cbcs have been off for two years (platelets and mpv as well as wbc and lymphocytes. Also had alot of stomach issues. I just started seeing a new primary and she is reviewing my file.

[Saassii in reply to JennaShi]

It sounds to me like you're being exposed to microbial contamination. Look for mold/water damage in your home or workplace. It may not be easy to find. But if you're being exposed your innate immune system will be in red alert trying to keep the invader out of the system.

That would push up everything you described in blood tests and would explain the flushing episodes even though those are currently triggered by likely high histamine foods and beverages.

[JennaShi in reply to Saassii]

Thank you, I appreciate your advice and will be looking around.

[Toetie]

I got these after using a shampoo I was allergic to. Do you also have itchy scalp?

[JennaShi in reply to Toetie]

Hi Toetie, thank you for your comment, I do often get the same as you, with itchy scalp at a separate time than showering, doc calls it sebhorric dermatitis. In these photos, however, they weren’t after a shower.

[Raystill]

Hi, I cannot help but notice that the rash stops at the base of your neck and is not visible on your chest where you might have been wearing a top. This would make me think it’s a contact dermatitis from something other than your clothes.

I too suffer from that plus some foodstuffs which I’m trying to identify. For me, wheat seems to be a problem as does alcohol.

My rash is worse at night when my body gets too hot and particularly bad around the neck and other joints.

I don’t know if my comments will help you but any facts might be useful, either way.

Regards

Ray

[JennaShi in reply to Raystill]

Hi Raystill, Thank you for your comment. I’m not sure but will look into this. I have had blood tests for allergies and all negative as well as a low IgE. Also found out I have dermatographia but this isn't a typical dermatographia rash. The top I believe was taken when I had a couple layers on (long sleeve and sweatshirt and jacket?) Can’t remember now whether I had a jacket on. and was out in the sun in 60ish degree weather just picking weeds. I’ve been to the allergist and she basically told me it wasn’t her department.

[Raystill in reply to JennaShi]

Hi, it’s very difficult to do tests for all allergies as there are so many different things that could be responsible. I’ve taken to eating very plain meals and avoiding anything with preservatives - it has helped but not cured!! I also don’t use soap or anything with fragrances. Lots of moisturiser is a must for me as the water here is extremely hard. I’ve yet to find a doctor or Dermatologist who is really skilled and really interested in pinpointing the cause of my problems.

[JennaShi in reply to Raystill]

I hear ya, and am saddened by this too. I wish you well on your journey.