Discrimination, Edinburgh.

[Pain_delight888]

Hi Everyone, I hope you are all well, as well as a can be expected,

I really need your help, I would like to know if I'm an isolated case in EDINBURGH.

I live in the NW of Edinburgh, the way I am treated in with the Medical Surgery in this area is wrong? Or just me?

Would really welcome any feedback from the Edinburgh committee please,

That from doctors and, phycologist that most of Fibromyalgia pain is in our heads? That it is not really REAL!!!

There is a whole host if things I could go through with this, my medication is given to me on a weekly basis?

Don't know why??

Please give you're feedback and experiences please,

Am I the only one that is getting treated like this or not?

It's wrong!!

[Forgetmenot88]

I’m in England and I have come across a few people who are like that with me, which makes me want to slap them across their faces and say if it’s in my head why can’t I think myself better so I can enjoy life to the fullest with my family!

[Pain_delight888 in reply to Forgetmenot88]

Hi,Thank you!! Thank you for getting back to me, they just don't get it!

I just want to scream the pain is to much with a flare up,

If they only knew themselves in the head ha!!

Thank you so much, they are making me think I'm going off my head cookcoo

not!!

Really appreciate your feedback back,

Nicola

[Dor1]

Hi, I live in SW Edinburgh. Diagnosed 12 years ago, at the time had a few doctors that were sceptical but they seem to be getting better informed where I stay. You don't say what meds you are on, if Pregabalin or gabapentin they usually restric the amount you get as they are now classed as class C drugs. I used to be on Pregabalin and got it monthly instead of 2 monthly like my other meds. I have heard of restrictions being place on the amount you can have due to the area you live in. Feel free to chat if you want, I don't know anyone with Fibro in Edinburgh.

[Pain_delight888 in reply to Dor1]

Hi,Thank you so much for taking the time to get back to me really nice of you to do so.

I don't know anyone in Edinburgh, so really nice to be in contact,

Just such an isolated position, please keep in touch maybe we can help each other,

Thank you so much,

Nicola.

[Dor1 in reply to Pain_delight888]

Sent you a private chat yesterday, don't know if you managed to access it. Go into your profile (just click on your name and press chat). X