I know this might sound stupid but does anyone else avoid telling others they have Fibromyalgia? Im so fed up of trying to explain it and i feel like some people still don't think it's a real thing.I also feel like I'm just a pain in the arse to my GP. If I do contact them about a new symptom (like pain management say I should) they really aren't bothered. No investigation happens, it's just put down to fibromyalgia.
Is it just me that feels like this? I feel hopeless at times 😞
I don't bother telling anybody ... nobody believes it's real ... just like the anxiety I've suffered with my whole life ... I just put on a happy smile ... much easier ... but that's just me ...
Yes…for 12 years. I made the mistake of telling an ex senior nurse (who I thought was a friend) & she made it clear she thought it was all in my head. She said that medics laugh about the condition. Six months later she asked me how I was. I said fine (well, I wasn’t going to tell her I was suffering, was I?) She smugly said ‘I knew you would be’!
My OH has Fibro, the important people know but she doesn't bother to tell anyone else. Doctors and medical staff here are actually very good with it.
I think I would have battered your ex senior nurse "Pixix".
Yes. I’ve heard “ it’s all in your head “ or “It’s not a real condition “. 😠 so, I don’t bother trying to explain but if they really want to know I send them medical articles. If they really want to know, they can read them. People close to me who understand know that I have good days/bad days and don’t judge, just work around them. Just an FYI, I got the best care and support from a Naturopathic Dr.
