New Here....: I am hesitant to post... - My Fibro Community

My Fibro Community

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New Here....

Dog_mom profile image
8 Replies

I am hesitant to post because I have been betrayed and belittled in previous "support" groups. But here I go.....

I am 27 years old. I was officially diagnosed in March 2015 with Lupus, Sjogrens, pleurisy and Fibro, chronic pain and fatigue. I have dealt with "something medical" since I was 9 but no doctor could diagnosed it. And they are still exploring for more...

Oh yes and I also have chronic chest pains that aren't cardiac related. Also have severe tachycardia not related to anxiety.

I also suffer from depression, anxiety including panic attacks, and I have a history of cutting. I have little to no self esteem and tend to be very negative.

I have no support system. No one understands or believes me. I have a lacking of trust in people and am losing the trust I have in my doctors.

If I don't comment on posts or seem like I'm not being supportive, it's not because I'm self centered (far from it), it's just that I don't know what to say or I am not in the right mind set to offer support or I feel I don't have the life experience to offer support.

I live my life for my dogs. If not for them I don't know what I would do.

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Dog_mom profile image
Dog_mom
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8 Replies
Agora1 profile image
Agora1

Hi Dog_mom Welcome. I'd like to see you in the "Anxiety & Depression Support Group". I think you will find a lot of men and women of all ages who can relate to your issues both medical and mental. I've been with that group for over 2 years now. Everyone is caring, supportive and understanding. It is a safe place for you to come to whenever you are feeling overwhelmed or alone with your pain. You will find so many of us who can relate to what you are going through. There is no need to feel obligated to respond until you are ready. Reading and taking in every one's life journey through these issues can be just as beneficial to you.

I'm happy you are giving us a chance to show that you do not have to suffer alone. Take our hand, we all care. xx

Needlebee profile image
Needlebee

Hi Dog_Mom, well done for taking the plunge and trying to trust again! I have Fibro, arthritis and Sjogrens - and a little dog that I adore. My GP is a love but I don’t trust other health professionals - like you I feel they are always assuming i’m exaggerating or that I’m wasting their time. I live in a very rural area so I do t really have any friends that I see regularly but I do have a husband I love very much and is incredibly supportive. Loneliness is an awful thing and sometimes when you’re not an OAP you feel there’s nothing g and nobody who is out there for YOU, no organisation etc designed to help. I can advise you to reach out through sites like this - do try offering help or advice even if it’s just sympathy, it shows you are willing to give as well as receive. Wishing you a happier 2018 honey!

Hey, I too was diagnosed with pleurisy & then fibro in 2015. Having chest pain is also one of my fibro symptoms. I believe you & can relate to everything you have written. Am here if you need a friend xx

Country-gal profile image
Country-gal

Wow . In this group as long as I've been here nobody belittle anyone. I'm so sorry you've had a rough time finding a friendly site. I too suffer from fibromyalgia. Plus bunch of other things. It's very hard to get up and do things everyday. Butif I don't then I would lay in bed and hurt worse. So think of this as your new family and I say welcome home.

suep40 profile image
suep40

That's is a shame that you were belittled on another support site. This site is deffo not like that.

I don't post much but find the site great for just knowing that you are not alone.

Take care

Agora1 profile image
Agora1

Hi Dog_mom, just checking in to see how you are doing. January is brutal for Fibro patients. I know you have a lot of other issues to contend with as well. Stay strong, stay focused. We are here for you to lean on when the day gets too difficult. I'm glad you have your furry friends around you. Chronic problems are tough but we are tougher when we are together as a group. Sending you a virtual hug, a feel good hug. Hope it helps to know that someone cares. xo

Muddle profile image
Muddle

I am so sorry that you are battling your illness alone with no support when your depressed it’s hard to be positive When you’re in pain it affects every minute of the day Is there a Mind group near you that you can go to for help Also hear we have a pain clinic

Hi, how are you? Just checking in! X

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