Frank

[SophieCat55]

MSA is just an awful disease I had to watch my Partner and beloved Frank slowly getting worse and then taken away from me devastated that I have lost him, he was so young only 53 when he passed I miss him so much.

There is no cure hopefully one day there will be and that our Loved ones can live longer it’ would be wonderful.

[Gill-C]

Thank you so much for sharing your and Frank’s story. I’m so sad for your pain, but hearing from you does remind all of us who have MSA to value each moment. Thank you again

[SophieCat55 in reply to Gill-C]

Thank you you’re very welcome

[Paul_and_Sue_Wood]

We are so sorry that Frank lost the battle against this awful disease and our hearts go out to at this time.We all know that this condition shortens lives and does not care when or how old anyone is, we just hope that the more we share and inform the more chance of a cure in the future.

Peace be with you.

Paul & Sue

[SophieCat55 in reply to Paul_and_Sue_Wood]

Thank you

[Niknak74]

I'm so sorry you've had to endure this awful journey and have lost Frank.

Sending you much love and hoping you will hold dear all the lovely times you had together and let go of the negative as time moves on.

Nic x

[SophieCat55 in reply to Niknak74]

Thank you I must admit it is so hard at times. He was such a lovely good man in every way I was blessed to have met him and an Honor to take care of him when he needed it the most in his life God bless him till we meet again 🙏🏻

[SophieCat55 in reply to Niknak74]

Thank you

[SophieCat55 in reply to Niknak74]

Thank you ever so much xx

[Kaye31]

so sorry to read this.

It is so so sad. Jon is progressing fast at the moment and is 52, it breaks my heart xx

[SophieCat55 in reply to Kaye31]

So sorry to hear this I feel your pain as I’ve been through it with my loved one 💕💕

[Derkie54]

So sorry to hear that news .

You did your best for him, couldn't do anymore than that.

Remember the good times.

Take care

Derek

[esj20]

I'm sincerely sorry to hear about Frank, I,m 52 and diagnosed just over a year now but i'm shocked at the speed and rate of this bloody diseases' progression including all the bizarre symptoms.

I know i appear to be flippant and jokey about this journey but it's the only way i can get to navigate my way back home when MSA finally takes me there.

Everyone on here is in my thoughts.

[SophieCat55 in reply to esj20]

Thank you and you’re absolutely right this disease is just awful. I believe not the same progression for everyone but it holds no bars. So my advice to everyone with this disease go and enjoy every day as best as you can for as long as you can. I know it’s not always easy because of the pain you might in but try and give it your best shot. Take care All you lovely people with this illness Lots of love and God bless xx