COVID Vaccination

[Nichod100]

has anyone had their COVID vaccination and it has affected them at all in regards to their MSA ?

[Yanno]

Jackie had hers on Friday - Oxford version - no issues to date other than a slight headache yesterday.If you want to here more about the vaccine and MSA, I know the MSA Coalition (USA) had a webinar about this last Friday. We didn't see it and the recording isn't on line as yet. I suspect once they put it up it will appear here multiplesystematrophy.org/b...

Having pointed you in this direction, I have to say we took the view as expressed by our GP that "the risks of Covid with MSA are massively higher than any risk associated with having the jab".

Take care, Ian

[Nichod100 in reply to Yanno]

Thank you for replying , Richard also had his on Friday and his mobility was very poor last night . He seems better today though . I was lucky and got mine also but I have really suffered since yesterday .I Have felt flu like symptoms . I agree with you though I would rather us have the vaccine than risk getting the awful illness.

[Oliverwindsor in reply to Nichod100]

Hi, this has been a concern to us. I was just wondering if I could be cheeky and ask your ages. X

[Nichod100 in reply to Oliverwindsor]

Of course 😜 husband is 66 and I’m 52 . He came in the group 70 ‘s and over .The CEV group , I am his full time carer and as we were at the very end of the day , I chanced my luck and managed to get vaccinated on the same day .

[Spudwelly in reply to Nichod100]

Hi. Can I just ask did you guys get the vaccine because you have MSA or because you are in the right age category? We’ve heard nothing about M getting a vaccine (he’s 50).

[Nichod100 in reply to Spudwelly]

Yes husband has MSA and I am his Wife / full time carer . I was just lucky as it was the very end of the day and I asked and there was one going spare .

[April121]

Hi there, my father is in his mid 70s and has potential MSA. He was diagnosed with Lewy Body Dementia a few years ago but a neurologist has recently informed him he believes he may in fact have MSA instead. He received the Oxford vaccine over the weekend and he had a terrible reaction the following day. He was physically unable to get out of bed and did not eat all day. My mother was able to help him to the bathroom but he collapsed and she had to call an ambulance.

He has been in hospital since as his blood pressure is dangerously low. He has suffered with low blood pressure as a result of his neurological condition for a few years now. The doctors and nurses have told us that the vaccine has caused this extreme reaction. We are hoping he will be discharged soon, but they are still worried about his blood pressure.

I’m sure the vaccine affects people differently, but I would keep a close eye on anyone with MSA who has the vaccine, in case a similar thing happens to them. I hope this is helpful to anyone.

[Nichod100 in reply to April121]

I was poorly for 36 hrs and I think it affected Richard just with tiredness that evening thankfully . I really hope your dad is better and gets home soon x

[IvyRose64]

I won't get mine now for a while but I received a letter from my GP, posted before Alan's death was registered saying he would get his mid February. As his carers both myself and my son would get ours at the same time. Letter was about making an appointment for nurse to come in and do Alan's. Alan was listed because of CEV he was 57, I'm 56 and my son is 29 so nothing to do with age.

[Ovx823k]

My wife and I had the vaccine yesterday, my wife is the one with MSA she has a headache this morning and both our arms feel like we have received a punch to the arm. But it’s not over painful I didn’t feel the needle go into my arm at all and hate needles.

[Wife-Of-A-Legend]

My Husband Joris had his last Friday. He is 48 and is on the CEV list due to autonomic failure/ MSA. He was absolutely fine and had no side effects at all. I am not registered as his carer as we only found out that he has MSA in October. The Nurses at Queens Square have said he seems to be moving through this awful condition slower than average. He is still fairly mobile at the moment so we thought we would hold off me becoming his carer until it is needed. So I will not get offered the jab until a lot later in the year. The relief we felt after his jab was quite overwhelming really. I'm sorry to hear others have had bad reactions to it though.

[Rosnmike in reply to Wife-Of-A-Legend]

Hi my partner is also under the care of Queens Square. Mike is due his jab tomorrow, he's worried.Like you I'm holding off being officially his carer but we have the forms.

Glad I found this place to see how others are getting on. X

[Annietutt]

Tony had AstraZeneca with no side effects thankfully, although he fell outside as we were get ready to set off and was shaken up so they did his vaccination in the car. I had the Pfizer and had mild headache and aches the following day. I was relieved that it did not seem to make his MSA symptoms worse.

[TK-67]

mum has hers in her nursing home - they all had AstraZeneca - the home did report that they had a few upset tummies a couple of days later (including mum). Given the complicated amount of drugs many of them are taking I'm honestly not surprised. Any addition or change will send mum a bit haywire. Everyone was ok within a few days.