Happy New Year: Christmas is over and I... - Multiple System A...

Multiple System Atrophy Trust

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Happy New Year

Madauntie profile image
4 Replies

Christmas is over and I survived despite my MSA. I accepted I couldn't do all the "running around" we feel we must do for the perfect Christmas Day. I bought presents only for my nearest and dearest and had loads of help wrapping and delivering them. I handed my kitchen over to my son who produced a great Christmas dinner, and wasn't offended when I couldn't eat it all nor when I fell asleep at the table.

Now it's full steam ahead to face the many challenges this rotten disease will throw at me. I will not only accept any help offered but will ask for help when needed. I realise it's ok not to be able to do everything myself but I will still do what I can.

My communication skills are getting worse and my short term memory seems to have gone on an extended vacation and no doubt there will be other challenges ahead. But I have decided to decline disgracefully. I'm going to "live" everyday I have left. 2020 is he Year I'm " coming out". No more secrecy I am the way I am not through choice but through a cruel twist of fate. If people can't accept it and fall aside that's their loss. They will lose the friendship of one special lady. Yes I am special.i have to fight my brain from the minute I open my eyes in the morning and I do it with a smile on my face.

2020 bring it on I will find a way to cope or ignore all that lies ahead.

I wish you all a very blessed new year and continue to pray for more understanding of this torturing disease.

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Madauntie profile image
Madauntie
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4 Replies
FredaE profile image
FredaE

Mad Auntie

That sounds like a very sane wonderful Auntie to me.

There was a group of us on here a few years back who all delighted in giving The Beast a run for its money. We never talked of fighting it because we knew it would win in the end, as it did., but it did not have an easy time in its eforts to ruin our lives

FredaE

Diane831 profile image
Diane831

Well done you. Asking for the help that you need is hard but definitely the best way forward, and if you can do it with a smile and thankfulness then those helping will be happy to be a part of your journey.

Wishing you smiles and laughter along the road in 2020.

Diane

Mad Auntie

Congratulations in joining the 'I'm here and I am what I am" club, you're attitude is commendable and will help you solve all those hurdles that will appear.

It is great to hear that family friends and helpers are around you and you are excepting there aid to make life easier.

Enjoy everything you can and it doesn't mattter you can't remember as those around you can and are happy at the time you enjoyed yourself.

Be proud and love every moment.

Paul & Sue

Kiwimagic profile image
Kiwimagic

That’s the spirit madauntie.

Sending you a virtual hug.

Keep asking and stay strong amazing lady.

To your family and friends sending you lots of love. 😘

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