Hi, Does anyone out there have PRV and Rheumatoi... - MPN Voice

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Hi, Does anyone out there have PRV and Rheumatoid Arthritis? If so, what medication do you take? Thanks.

piggie50 profile image
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piggie50
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StanM profile image
StanM

Hi

I don't know if I can be of any help apart from wishing you well. I was recently diagnosed PVR with a Jak2 positive I also have hart problems, COPY and bad arthritis. and to date the PVR is not affecting me much.so don't worry about it too much you can't change anything. this sight will help but the abbreviations are sometimes a little difficult to understand. I was told that this condition is rare so don't be disheartened if you don't get many replies. its not because people don't care.

all my best wishes and take care

Stan

piggie50 profile image
piggie50 in reply to StanM

Thanks Stan! I have had PRV for 7 years now and been a member of this site for some time. I also used to suffer from rheumatoid arthritis, but have not had this for the past 8 years. Unfortunately it has now returned. My query was mainly around medication as the normal medication for RA is Methotrexate which is a low dose chemo, I am also due to start hydroxy next year which is also a low dose chemo. I just wondered how the two would mix? I can ask both consultants when I next see them.

Thanks for your reply.

StanM profile image
StanM in reply to piggie50

you are very welcome. if you need a chat gust contact me. I sometimes don't understand what's going on and I often wonder if its always wise to ask. well at lest don't ask until your ready for the answer good or bad.

good luck

Stan

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