Anyone going to the forum in Newcastle on Friday? - MPN Voice

MPN Voice

10,886 members15,202 posts

Anyone going to the forum in Newcastle on Friday?

lizl profile image
lizl
12 Replies

I'm going to the forum on Friday in Newcastle, which will be my first one. Has anyone else been to one? What can I expect?

Lizl

Written by
lizl profile image
lizl
To view profiles and participate in discussions please or .
12 Replies
Swede profile image
Swede

Hello,

No, sorry haven't been and it is too far away.Sadly.

But, please, tell us after what you think...

MFBMT2011 profile image
MFBMT2011

You can expect a presentation on the various diseases and what is known about how they develop and also information on current drugs, treatments and trials. You will probably hear some stories from fellow patients and get to see a lot of people 'who do not look ill!' It is a good opportunity to talk to fellow sufferers so everyone gets an ET, PV or MF badge/label on which their name is written; there is great value in talking to fellow patients so don't be shy. At Cambridge last week we finished with a disease breakout session with people with the various diseases meeting in different parts of the room to share symptoms, solutions etc but most importantly know that they are not alone. There is no such thing as a stupid question other than one that is not asked when one does not know the answer! It is a great chance to learn more about your condition, be positive and don't waste it. Best wishes. Chris

As said above, it is well worth attending the forums. The specialists put in a great effort to make it a success and our own Maz also works like trojan up to and including the day itself. I would urge everyone who gets a chance to attend one does so with enthusiasm. I attended one a year ago in Edinburgh and a disappointing number (about 11 people) turned up. Although the weather was bad that day I really don't know why there was the apparent lack of interest. I felt really bad for the volunteers and others who gave up their own time to put it on. It was very interesting and enjoyable. I think, maybe, "use it or lose it" is the relevant advice, but also, enjoy it.

LouisePRV profile image
LouisePRVVolunteer

Hi Liz, just to reiterate what the others have said.

I have been to three forums so far - two in London and one in Newcastle, and all were well worth attending. The consultants are informative and very approachable and it's great to meet other patients with this strange blood cancer - everyone is very positive and upbeat, questions are encouraged and you will come away better informed!

I will most definitely be attending the patient day in London in November - does anyone know the proposed date for this?

Thanks.

Mazcd profile image
MazcdPartnerMPNVoice

What lovely positive comments about the forums, thanks everyone, and without all of you turning up and helping out we couldn't run them. I am looking forward to seeing people on Friday in Newcastle, I will apologize in advance to anyone who came to the London forum in November and heard me give a talk, I have volunteered to give my talk again, so sorry if you have already heard it! I can tell you that the patient day will be held on Sat 16 Nov but that is all I know at the moment, we have a couple of speakers confirmed but that is about it, I should hopefully have more information in the next couple of weeks. So see you all on Friday. Maz

Mazcd profile image
MazcdPartnerMPNVoice

Just been informed of a change of room for the forum, it will now be held in The Grainger Suite, which is next to the Marlborough Suite. It will be signposted to direct you to the correct room. Maz

lizl profile image
lizl

Wow, what excellent answers. Thank you to you all, I've yet to hear, apart from the very helpful Mazcd, of anyone else going from the Newcastle area but I suppose there will be a lot of people who don't participate in this forum, who will go.

Unfortunately I need to work in the morning and will miss the start but I'm certainly looking forward to going.

Thanks everyone. Liz

Speedy1319 profile image
Speedy1319

I have only just heard about this meeting - and I am going! :-)

Speedy1319 profile image
Speedy1319

I have only just heard about this meeting - and I am going! :-)

Speedy1319 profile image
Speedy1319

I have only just heard about this meeting - and I am going! :-)

wendycu profile image
wendycu

HI i am going, cant wait.

jillydabrat profile image
jillydabrat

Hi Liz, me and hubby are attending and this will be our first too so can't tell you what its like. Will look forward to meeting you though, Jill xx

Not what you're looking for?

You may also like...

Newcastle forum

Good morning! I hope you are all feeling good today😊 Just wondering how many of us are going to...
Sand-Dancer profile image

Newcastle Forum

If anybody from Teesside would like to attend the Newcastle Forum but has no transport, I am...
jillydabrat profile image

Newcastle Forum 12/10/18

Just back from a very informative forum where my partner and I met some lovely people. As the...
dianetat profile image

Who is going to the Colchester Forum ?

I just wondered who is going to the Colchester Forum on the 4th Feb. It would be nice to put a face...
rubyrubyruby profile image

How many on the forum in the west midlands?

Hi,all mpn'ers,just came across an old post about how a support group was set up,i was wondering if...
Tico profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.