I live in Colchester area. Not happy with Hospi... - MPN Voice

MPN Voice

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I live in Colchester area. Not happy with Hospital.My condition i.e.E.T ./ Vera.Would like to change Hospitals.Any suggestions please? V.

mc7232 profile image
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mc7232
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rubyrubyruby profile image
rubyrubyruby

Hi. I am in Colchester area too!!

Would be interested to know what you are not happy about as I am not convinced either!

Message me if that would be more appropriate.

LouisePRV profile image
LouisePRVVolunteer

Hi.

I was diagnosed 3 years ago with PV.

I wasn't at all happy with the rather cursory treatment I received from the haematologist and so made enquiries to find a haematologist who specialised in MPD's.

In the end I saw a specialist privately ( about £120.00 but what price health and peace of mind?) and got an hour of his time. Well worth every penny - he explained the disease, the treatments, self help etc etc. I'm still with the original NHS haematologist ( no choice here unless I want a 3 hour round trip every 4 to 5 weeks) but we get along fine and I trust him - he has the measure of my constantly questioning attitude - he doesn't like it, but knows he has no choice! Contact mpdvoice.org.uk for haematologists specialising in MPD 's in your area.

Hope that helps. Louise

catkinspolymer profile image
catkinspolymer

Guys and St Thomas's in London under Prof Claire Harrison.

harleydavidson profile image
harleydavidson

Hi mc7232 and rubyrubyruby

I live in Billericay Essex and attend Basildon hospital Consultant Dr Mane, she is very good and thorough. Before I was in Bury st Edmunds West Suffolk Hospital and consultant was Dr Beatty, she was so lovely that I still miss her. You are between these two hospitals, both around 45 minutes to an hour. Please contact me if I can be of help. Mel x

tissi profile image
tissi

My husband treated at Ipswich Hospital and they are very good. They also refer to Addenbrookes when they need to.

NewBloom profile image
NewBloom

Hi, I'm from Laindon, Essex and attend Basildon Hospital. My consultan is Dr Shankri, she great! Was formally diagnosed Oct 12,she picked-up on PV and ET from my first appoint, started my on meds that day. Hi Harleydavisdon, you live around the corner from me.