I hope to be offered a 2nd chance to go on the S... - MPN Voice

MPN Voice

10,445 members14,398 posts

I hope to be offered a 2nd chance to go on the SAR trial.Have you been on one of the trails and are you able to share your experience? Ta

hackett profile image
2 Replies
Written by
hackett profile image
hackett
To view profiles and participate in discussions please or .
2 Replies
ourlife profile image
ourlife

Hello hackett, hope you are well, are you still going for this trial? I have had good results today plts 408 hb 15 and creatine back to normal on 3 mg AG daily. So the SAR drug is now out of my system,How are you doing?

hackett profile image
hackett

Hello Ourlife, apologies for not writing sooner.The trial has been postponed to mid February now (and I have an uneasy feeling that that may not be all). In order to get my bus authority back I have had to demonstrate that I can keep my platelets below 600 which has been difficult up until now. I have just increased my dose of AG to 2.5 per day and that seems to be doing the trick.I wish all a peaceful and a sense of well being (I know that sound corny) Christmas.. Regards hackett