Cardiff MPDVoice 4th October

[MFBMT2011]

Look forward to meeting anyone who is going. Am doing a small turn on my experience, might talk about Myelofibrosis and BMT as well.

Chris

[StreetPastor]

Very quick question Chris: As you have had a BMT, does this mean you no longer have ET, PV or whatever you had before?

[MFBMT2011 in reply to StreetPastor]

I had primary Myleofibrosis and was recommended for BMT (actually SCT - Stem Cell Transplant) by Claire Harrison. Following my transplant I don't have Myelofibrosis any more. My blood levels are good, my spleen has shrunk and my cells are 100% donor (donor was a lady so I am all woman!).

[StreetPastor in reply to MFBMT2011]

Wow! Forgetting any problems you may have had with the BMT or the risks attached this is amazing news!

[babbittybumble]

Hello,

That is wonderful to know. Look forwardt o meeting you in Cardiff.

[MFBMT2011]

Nice to meet a couple of people in Cardiff. Will pick up with MM. Spoke briefly to a guy who is about to go to transplant but didn't exchange details; Would like to if you read this.

Next forum in London in November.

Chris