Where to find patient information about MPNs, and in particular myelofibrosis.

[Gipsy123]

macmillan.org.uk/cancer-inf...

This is s helpful short guide put out by Macmillan. UK based- but England, Wales, Scotland and Northern Ireland all have different access to meds (as I found out the hard way).

I

[Scambria]

The Australian Leukaemia Foundation put up a series of optimal care guidelines for patients and for practitioners. Written to be accessible, the hive good, common sense advice. The MPN patient one is here: cancer.org.au/cancercaregui...

Others can be found from here: leukaemia.org.au/blood-canc...

[Gipsy123 in reply to Scambria]

Thanks, Scambria.

[ainslie]

the MPN Voice website is also very good info, I think written by Clair Harrison and Co