macmillan.org.uk/cancer-inf...
This is s helpful short guide put out by Macmillan. UK based- but England, Wales, Scotland and Northern Ireland all have different access to meds (as I found out the hard way).
I
Where to find patient information about MPNs, an... - MPN Voice
Where to find patient information about MPNs, and in particular myelofibrosis.
Written by
Gipsy123
To view profiles and participate in discussions please or .
3 Replies
•
The Australian Leukaemia Foundation put up a series of optimal care guidelines for patients and for practitioners. Written to be accessible, the hive good, common sense advice. The MPN patient one is here: cancer.org.au/cancercaregui...
Others can be found from here: leukaemia.org.au/blood-canc...
the MPN Voice website is also very good info, I think written by Clair Harrison and Co
Not what you're looking for?
You may also like...
All about me and my Myelofibrosis
Hi all my name is Peter, I live in Western Australia and I was diagnosed with ET in 2010. I...
Question about hydroxy and being low risk PV patient
Hello all. Wanted to know if since I am low-risk and currently on low dose asprin with phlebotomies...
Worries about side effects of hydroxycarbamide - hair loss in particular
I was diagnosed with ET last July aged 66. I also have type 1 diabetes though this is well...
Patient Power live webinar today: exercises to manage cancer fatigue and discomfort
This might be worth watching if you suffer with fatigue and want some exercise tips to help:...
Help, I’m too anxious to listen to info re MPNs and COVID
Hi everybody, this is my first post.
Would anybody be able to tell me please, following yesterday’s...
Related Posts
Unsure about where to go next
Variations in Patient Response to interferons
MPNs and MPN Voice featured in The Telegraph Newspaper
Hoping to find out others experiences to see if I have anything to be concerned about please 
Myelofibrosis patient experience talk -I'd like to do one at the Oxford Forum on 24th April
