PV question : Hi, I have been diagnosed with PV... - MPN Voice

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PV question

Axelcharlie profile image
6 Replies

Hi,

I have been diagnosed with PV over 2 years, just wondering can a person with this condition get Botox/etc, any advice would be much appreciated.

All the best.

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Axelcharlie profile image
Axelcharlie
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6 Replies
Mazcd profile image
MazcdPartnerMPNVoice

hi Axelcharlie, it would be best to ask your haematologist about this. Regards, Maz

Axelcharlie profile image
Axelcharlie in reply to Mazcd

Thanks will do and thanks for the reply.

KLCTJC profile image
KLCTJC

This is just my experience. As most people know I am a dermatology PA. I have PV and have had it for almost 4 years. I asked my MD Anderson doctor years ago and he told me it was fine. I have Botox every 3-6mos and I am on Besremi and have had it since I started that. And going in March. This is my experience but I still cleared it with my doctor. And may get some laser treatments too. I would clear it with your doctor and be sure to get your cosmetic treatments from a dermatologist or plastic surgeon. They will know more about which treatments are safe for you. Be specific with your doctor about what you want done. Botox maybe ok but other things may not. Avoid med spas. Just be sure it isn’t a place that will just say yes to take your money. Make sure they know when to say no that isn’t safe or it could make something worse. Make sure you tell them all the meds you are taking, etc. hope this helps!!!

Axelcharlie profile image
Axelcharlie in reply to KLCTJC

Hi,

Thank you so much for your reply. I appreciate all the information.

All the best, take care.

Elizka profile image
Elizka

I have been getting Botox for over a decade and it hasn't been an issue with my PV.

Axelcharlie profile image
Axelcharlie in reply to Elizka

Hi Elizka,

Thank you for the reply, All the best.

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