Sudden bone pain: I was diagnosed with blood... - MPN Voice

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Sudden bone pain

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I was diagnosed with blood cancer (Essential Thrombocythemia) 7 years ago and then with Prostate Cancer 2 1/2 years ago. Gleeson 4+3 with bone mets in ribs, hips, and one in skull.

I am on Abiraterone and prednisolone for the PC, plus hydoxicarbamide (500mg/day) and clopidogrel for the ET.

Plateletsseem fairly stady between 450 - 500 although HU doseage slowly increasing to keep it there. I am anaemic though with Hb at 125 and RBC at 3.7

I have and still get hot flushes, but recently I get pain in my bones starting normally in calves and and forearms and then spreading to chest and rest of body. It can be very painful and lasts several minutes.

I had thought this might be an effect of the PC, but now wondering if it is the ET, perhaps changing to MF?

Welcome any ideas of cause and what I could do to stop it, as it is definitely getting more frequent.

Thank you all.

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