Jak2 results

[Tinkerbelle50]

I've been waiting for Jak2 results for 11 weeks now! Can anyone tell me if they have waited this long to get their results? This has been on going since beginning August when Dr rang me to say platelets were high! Do you think it could be shortage of staff in specialist labs as I know bloods were sent out and not processed in local hospital. I am still waiting for appt to see hemotologist in local hospital, although accepted on referral from my doctor.

Any insight would be appreciated. Anxiety is not good. Many thanks.

[EPguy]

In my records my BMB was analyzed in just over a week. I got the results in the Dr visit about three weeks after the BMB.

My guess is if Dr is part of a large cancer or research organization results are likely to be faster.

Can you find out which lab is doing the procedure? At least you'd want to be sure it's not done already while Dr is not following up to tell you about it.

[Tinkerbelle50 in reply to EPguy]

Thank you for your reply. Much appreciated.

[Maggie-ol]

Hi Tinkerbelle

I am in the UK -diagnosed with PV in 2016-my results were given to me one week after having bloods taken.

I hope you get your results quickly as, you are correct-anxiety is not good for us!!

Kind regards

Margaret

[Tinkerbelle50 in reply to Maggie-ol]

Thank you for your reply. It's much appreciated.

[Cat1001954]

I waited for 7 months to see a heamatologist hope you see one sooner x

[Cat1001954 in reply to Cat1001954]

due to pandemic

[Tinkerbelle50 in reply to Cat1001954]

Thank you

[mhos61]

It’s highly likely that your results are back with your specified haematologist, and it’s just a matter of getting a consultation appointment to discuss this further. I would chase up the haematology department.

My history.

I was found to have slightly raised platelets in a random blood test in September 2016. My GP recommended a further blood test in December 2016, platelets still raised. I was then referred to haematology, had Jak 2 test in January 2017. A further Consultation appointment was sent out for May 2017 where I was informed that I was Jak2+.

[Tinkerbelle50 in reply to mhos61]

Thank you

[hunter5582]

Results typically take about a week for a JAK2 quantitative analysis. Suggest you check in with your doctor's office and find out what is going on.

[Tinkerbelle50 in reply to hunter5582]

Thank you

[Kiwijazz]

I think 11 weeks is ridiculous. I got my results back within a week. I would definitely chase them up. You will need to find out what is going on and get on the right medication or maybe no medication will be needed at this point. Never the less, someone has dropped the ball and you need to be informed of what is going on with you.

[Tinkerbelle50 in reply to Kiwijazz]

Thank you. Will chase them on monday!

[Wyebird]

hi I was told mine would take about 6 weeks but took less. My concern is your blood is being tested for jak2 and not mutations in general. Please correct me if I’m wrong

[YBSx]

hello

When I had my Jax2 test I was told it takes at lest 6 weeks. My test was sent to Leeds West Yorkshire and did come back in about 7weeks.

Yvonne

[Hopetohelp]

At the time I had my jak2 test I went privately and it took 2 weeks here in the uk. Now I am with nhs. My Gp told me the consultant waiting list was about 3 months which is why I went privately for diagnosis. I would ask your Gp to chase up referral. On the plus side, once you have your first appointment, I found the nhs very good once you are under their wing and should receive blood tests and consultation at least every 12 weeks.

[DiveGoddess]

Hello Tinkerbell,

Jak2 can be seen in blood test. I went to MD Anderson and within one week labs posted to MyChart. My next appointment 5 weeks later we discussed with Oncologist. I did BMB same day but those results took three weeks to post. I would call and ask. Sometimes when lab is sent out, it gets lost. Best of Luck. There is a panel in one blood test that looks at, I believe 84 known genes.

Christy

[Meatloaf9]

I have had Jak checked twice, in each instance I had the results in a week or less and they were posted on my patient portal. Should never take much longer than that in the US, I don't know about in the UK or other countries. Best to you.

[Rockhigh]

I am from Canada and It took approximately 6 weeks. They said there was only one lab set up for this type of specialty test that looks for the DNA mutation.

[Lena70]

I had to wait about five weeks for my results. I think it may have been due to it being the holiday season.

[bjay22]

I found out really fast, within days. Sorry you have to wait so long. Maybe you should call. They might have the results just sitting there.

[Mica11]

I remember waiting around 3 months here in Scotland for my results back in 2017. I was told it takes a while and not to worry. I knew very little about it and made an effort to take them at their word.

[Exeter21]

mine were done by 10 days however someone in my area is still waiting after weeks so chased it up & looks like tests lost 🙈, in our current chaotic nhs systems !!! Now being done again 🙈

[Mandz12]

I was diagnosed pv in January 22 had a blood test week after phoned me day after saying I was jak2 positive. Not been seen in clinic since January just have my blood and they phone with count next day them issue my chemo medication. Not really very caring about issues your dealing with . X

[Lilliegarden]

My results took about 5 weeks back this March. The waiting was dire, I found worse than the result!

[SDJD]

I had an NHS consultant appt within a month of my Jak 2 test confirming it was positive. Definitely chase it up. Suzy

[Minu68]

I had my result back within a couple of weeks of having my blood tested, so seems like you’re waiting a long time. Hopefully you’ll have the result soon xx