ET/MPN and vascular calcification

[Softy125]

Has anyone studied issues related to ET/MPN and vascular calcification?

[EPguy]

There is actually a fresh such study that concluded:

"These novel data support the hypothesis that MPNs have an increased burden of cardiac calcifications, independent of other cardiovascular risk factors"

sciencedirect.com/science/a...

My cardiologist recently ordered a CAT scan for me. I had zero score, (the desired outcome) I think he expected something more. But you bring up a good point that we should all be getting this test with our increased risk.

[Zingawinga]

No, as Im fairly newly diagnosed, a few months ago.But Im a nurse in a perioperative environment, so will ask our vascular surgeon and cardio

Im in New Zealand, dont think we even have MPN specialists here! so am enjoying the support of this group 🙂

[KyleeR in reply to Zingawinga]

Hey! From NZ too 👋🏼 I believe Dr James Liang at Auckland specialises in MPN. I’m contemplating seeing him as a second opinion. Where are you based?

[Zingawinga in reply to KyleeR]

Oh cool, Im really happy to find another kiwi. Im in Napier, only diagnosed this year with ET/ JAK2 6%. Would be really good to make contact 🙂

[KyleeR in reply to Zingawinga]

Same here! Diagnosed after pre-op bloods picked up high platelets. I’m also ET/Jak2. It’s been a tricky process to say the least 🥴 - feel free to message me if you’d like to make further contact 😊

[Zingawinga in reply to KyleeR]

Diagnosed exactly the same way, with pre op bloods!, but looking back, platelets had been elevated for 2 years.Not sure how to pm you but would be good to share support, thanks

[Wyebird in reply to Zingawinga]

my pre op bloods were ignored, platelets were over 500

[Wyebird in reply to Zingawinga]

hi I fly to NZ from Uk on Wednesday . I actually think we visit Napier

[hunter5582 in reply to Zingawinga]

There are actually 3 MPN Specialists listed in New Zealand.

New Zealand Auckland North shore Dr. Anna Elinder-Camden

New Zealand Hamilton Waikato Dr. Natalia Gavrilova

New Zealand Hamilton Waikato Dr. Hugh Goodman

mpnforum.com/list-hem./

Do please let us know what your cardio team says on this issue.

[Zingawinga in reply to hunter5582]

Thanks so much for the specialist list, much appreciated