ET/MPN and vascular calcification: Has anyone... - MPN Voice

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ET/MPN and vascular calcification

Softy125 profile image
10 Replies

Has anyone studied issues related to ET/MPN and vascular calcification?

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Softy125 profile image
Softy125
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10 Replies
EPguy profile image
EPguy

There is actually a fresh such study that concluded:

"These novel data support the hypothesis that MPNs have an increased burden of cardiac calcifications, independent of other cardiovascular risk factors"

sciencedirect.com/science/a...

My cardiologist recently ordered a CAT scan for me. I had zero score, (the desired outcome) I think he expected something more. But you bring up a good point that we should all be getting this test with our increased risk.

Zingawinga profile image
Zingawinga

No, as Im fairly newly diagnosed, a few months ago.But Im a nurse in a perioperative environment, so will ask our vascular surgeon and cardio

Im in New Zealand, dont think we even have MPN specialists here! so am enjoying the support of this group 🙂

KyleeR profile image
KyleeR in reply toZingawinga

Hey! From NZ too 👋🏼 I believe Dr James Liang at Auckland specialises in MPN. I’m contemplating seeing him as a second opinion. Where are you based?

Zingawinga profile image
Zingawinga in reply toKyleeR

Oh cool, Im really happy to find another kiwi. Im in Napier, only diagnosed this year with ET/ JAK2 6%. Would be really good to make contact 🙂

KyleeR profile image
KyleeR in reply toZingawinga

Same here! Diagnosed after pre-op bloods picked up high platelets. I’m also ET/Jak2. It’s been a tricky process to say the least 🥴 - feel free to message me if you’d like to make further contact 😊

Zingawinga profile image
Zingawinga in reply toKyleeR

Diagnosed exactly the same way, with pre op bloods!, but looking back, platelets had been elevated for 2 years.Not sure how to pm you but would be good to share support, thanks

Wyebird profile image
Wyebird in reply toZingawinga

my pre op bloods were ignored, platelets were over 500

Wyebird profile image
Wyebird in reply toZingawinga

hi I fly to NZ from Uk on Wednesday . I actually think we visit Napier

hunter5582 profile image
hunter5582 in reply toZingawinga

There are actually 3 MPN Specialists listed in New Zealand.

New Zealand Auckland North shore Dr. Anna Elinder-Camden

New Zealand Hamilton Waikato Dr. Natalia Gavrilova

New Zealand Hamilton Waikato Dr. Hugh Goodman

mpnforum.com/list-hem./

Do please let us know what your cardio team says on this issue.

Zingawinga profile image
Zingawinga in reply tohunter5582

Thanks so much for the specialist list, much appreciated

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