et to mf update

[glyndale]

well spoke to my consultant today not sure if im progressing bloods normal apart from slightly low hb which has been up and down for last 3 years,so having a repeat bmb and take it from there.

[lizzziep]

I’m in a similar position. I’ve been very anaemic for a long time, other counts, including platelets, ok. I had a bmb which showed some fibrosis and scarring. Doc said probably as a result of the ET and the Anagrelide. So my Anagrelide dose has been reduced, got more blood tests in a couple of weeks to see if that’s made any difference and further decisions then. Hope all goes well for you.

[glyndale in reply to lizzziep]

thank you for your reply,i will have to wait for the results of my bmb and see how we proceed.hope you keep well also.

[DiveGoddess]

best of Luck to you. Can you share signs of progression as I have ET, newly diagnosed.

[glyndale in reply to DiveGoddess]

nou sure if im progressing, only symptoms are fatigue, slightly low hb and slightly enlarged spleen.physical symptoms havent changed since my et diagnosis,platelets now normal and i just take aspirin. Hope this helps.

[Cja1956]

It’s my humble opinion that you probably are not progressing to MF since you stated that the only abnormal numbers are your hemoglobin. I progressed a few years ago, after several years of anemia and very high platelets. A BMB, in believe, is the only way to really know to see if you have fibrosis so I guess if you want peace of mind, it’s a good idea.

[glyndale in reply to Cja1956]

Thank you for replying, yes i need a bmb ,my consultant also said i dont need any other treatment apart from aspirin at the moment as i have no severe symptoms only fatigue.Hope you keep well.