HU - one good thing

[Winchie]

There are so many bad things about ET. I have been on HU for about 2 1/2 months. The good thing is I used to be lactose intolerant and now I can eat everything and it does not bother me. I had a lot of G.I. problems with different things that I ate. I had these problems for years and now I can’t eat all those foods that didn’t agree with me before so that is one good thing.

[EPguy]

Interesting improvement. According to this ref, HU can contain lactose

"This drug contains lactose (milk sugar). If you have an intolerance to lactose, contact your doctor before taking this medicine" A surprise. Maybe the lactose exposure is helping somehow.

cancerresearchuk.org/about-...

There is also a thread on this forum about it:

healthunlocked.com/mpnvoice...

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I've had unexpected improvement to my vision since starting Besremi, (or maybe the NAC supplement) Nice to have a good side effect sometimes.

[Winchie in reply to EPguy]

The HU originally caused constipation but I take Metamucil every day now and I am able to drink juice, eat cheese and dairy products with no problem. I used to have IBS but HU has cured that. So in that respect it was a miracle for me. I feel so much better and I’m able to do so much more. I hope it lasts.

[Mostew]

long may it continue. Its very suprising ..

[KentBee]

Hi, have been on Hydroxycarbamide for six years and have not had a migraine in all that time. Previously, I used to get several a month. Do have fatigue, occasional dizziness and bleed very easily but platelets good.

[Winchie in reply to KentBee]

So is dizziness related to this? I felt lightheaded this morning and did not know why. I took my blood pressure and it was fine. Layed down for a while and I am OK now, back to normal

[hunter5582 in reply to Winchie]

Dizziness is a common reaction to HU. online.epocrates.com/drugs/...

Whether HU was the cause of your incidence of lightheadedness is something you will have to determine. This symptom can happen for a number of different reasons. Suggest you keep track of recurrence and be sure to let your care team know if it becomes an ongoing issue.

[Winchie in reply to hunter5582]

Thank you so much for the information Hunter.