MPN 10 Scale

Hi this scale seems like a useful tool especially for folks like me who are reluctant to answering questions at times about my MPN.

[EPguy]

I think you missed adding the link.

[Fjdjdjdjd]

mpntracker.com/mf-et-tracke...

Found it!

[Hidden in reply to Fjdjdjdjd]

Oh blimey fjdjdjdja thank goodness for that l have a head full if mashed potatoes because of loud tinnitus,however l also found it again 😅.

[EPguy]

I score low although misery can be high. They don't include "Malaise" in most MPN scales.

A version of this scale is being used to for the NAC trial. Dr. Angela G. Fleischman is looking for improvements to it using this supplement.

clinicaltrials.gov/ct2/show...

[Hidden]

Shameful, that's a great word and would be extremely effective in bringing to the surface many of the silent or hidden factors in MPN. I have to say l spotted this lack in the score sheet and my heart sank causing me even more malaise, than usual, big pharma once again relying totally on material/physical results to push an agenda.😱

[Joetcalr]

The haematologist always goes through this on the phone, but virtually all my symptoms are down to the medication, he's not interested in those tho.

[Hidden in reply to Joetcalr]

Hi yes in my own experience hematology seem to be interested primarily in the efficacy of traditional medicines, a limited view in MPNS of course this is my own experience so far.😕