healthy diet

[Jody00]

am back here again just wondering i got told stress me out to have a healthy lifestyle and diet, does diet mean has in eat like veg salads fruits to had into meals has my haematologist not said what kind of diet to have so ive just been added like veg salads to my meal eating fruits I have fibre a day is this kind of right for a deit Xx

[Mostew]

Look up anti inflammatory diet . That recommended . Let us know if you need more advice x

[Jody00]

okay is this for ET and thankyou very much I will do some research on this thanks again and I will doXx

[Mostew in reply to Jody00]

It’s good for ET . Be relaxed about following it . Especially at first if you find it hard . A take away occasionally is fine . X

[Hidden]

Hi Jody l try to follow the anti-inflammatory diet as well and the Mediterranean diet - l try not to eat to many processed foods or fast foods. l stick to fish, legumes vegetables fruit especially berries use olive oil wholemeal bread.

[Jody00]

Thankyou this is great advice I will look it up I love fish a do like and eat my veg salads and fruits but I also have 2 take aways a week which a need to cut out and a love wholemeal bread a just need to try cut out take away foods because i do feel better when am eating healthier. Thankyou Xx

[Belgobrit72]

All my consultant ever told me was to avoid too much red meat. I lost quite a bit of weight last year and my haematocrit seemed to go down with the weight but not sure if it was just a coincidence as it is creeping up again.

[KoroCharlie]

Short version: It’s never too late to benefit from a primarily plant based diet.

One of the changes I made when I knew I had a higher risk of dying because of my myelofibrosis condition was to become more mindful of what I was eating. By listening to my body I was able to identify (over time) foods that were not helpful to my better health. More importantly I discovered foods that enhanced my sense of well-being. I eat meat occasionally but I have found a whole new eating regime based on plant based nutrition. Raw vegetables provided the quickest positive and confirming feedback. But it takes time to chew your way through a plate of raw vegetables. Meals were an ordeal, not a pleasure. But vegetables were definitely something we wanted to keep. That took us to Indian cuisine especially the vegetarian. It has been a whole new adventure learning Indian cooking. Takes vegetables to the next level.

And then I have to sit down for 4 hours as fatigue visits again.

Kei te tu tonu, kei te ora. Tihei Mauriora!

I’m still upright so I am alive!

[Mazcd Partner MPNVoice]

Hi Jody, we have some information on our website about a healthy diet

mpnvoice.org.uk/living-with...

and staying well

mpnvoice.org.uk/living-with...

best wishes, Maz

[Lifam]

Good anti-inflammatory diet is what we need. Try to get idea from Mediterranean diet, which lots of us do. Keep our cholesterol down and keep healthy weight. Watch out sugarand sodium intake etc. There are lots of variety in healthy diet.

[ladyanello]

Dr Robyn Scherber at UT Health San Antonio does a lot of work in diet and nutrition in MPN's. She has videos on youtube, I think.

[SuET2017]

Hi Jody

As above I feel so much better when I follow Mostly a ‘Mediterranean’ diet. Also, I’ve cut out refined/added sugars and as soon as I have them I feel awful. And of course water - not too much but enough so that I never get dehydrated.

Take care

Sue

[hunter5582]

you are going to hear the same thing from many of us. Various iterations of anti-inflammatory and Mediterranean diets. There is plenty of info on these on-line. The short version is that we need to give ourselves the best chance possible to protect our health when managing a chronic disease like a MPN. Good nutrition is the basis of good health.

A few things that will help. Eat a plant-rich diet, with a lower ratio of meat and animal products. That does not mean do not eat animal-based nutrition, just relatively less of it. Pay attention to increasing anti-oxidants, flavonoids, and polyphenols in your diet. Focus on whole grains when eating carbs. Avoid processed foods. Be aware of/avoid the toxins in the food chain, including: synthetic hormones, xenoestrogens, pesticides, heavy metals (lead), anti-biotics, etc. Include probiotics and prebiotics in your diet. The good news is that all of the above is not hard to do and the food is really tasty. Allow yourself some food "vices" - but they are treats - not the bulk of your food intake.

Seeking a complete nutrition analysis (e.g. NutrEVAL) can be a good idea. I did one and found out I was severely Vit B/Folate, Moderately Vit D and Magnesium deficient. I also had very elevated levels of mercury (too much tuna). I now take supplements for all of the above and do feel better for it. Regarding supplements, I also take curcumin - which works better than NSAIDs for osteoarthritis/inflammation.

Hope that helps. All the best to you. Eat well and be happy! 😋

[IrishHiker]

Ask for a nutrition consult to get a recommended diet to suit your needs.

[souplover]

I have PV - and had been feeling severely exhausted at least some of the time. My hematologist said it could be due to low iron levels, but that I can't take iron supplements without raising dosage of hydroxyurea.

Instead I've added much more green vegetables with high iron content (I think), such as kale, broccoli rabe, and arugula. And any other food with high iron content. (I'm a vegetarian.) My iron levels have gone up and I seem to feel less of the exhaustion.

[Jody00]

Thankyou for all looks like everyone on the same path way for same diets foods ive had a search and going go for anti-flammatory diet foods looks nice and sounds tasty 😋 thankyou very much Xx

[JP1952]

Dr Angela Fleischman has also posted excellent videos regarding anti inflammatory advice on YouTube. She promotes a Mediterranean diet.

I have been following it myself for about the last three weeks and I swear it is helping with the itching.

[Jawas]

Hi Jody00

This is the most comprehensive advice I have found for MPN patients

pvreporter.com/wp-content/u...

All the best

Jawas

[Jody00]

Thankyou u all this has been a great help 😊, can anyone tell me if u aloud to have or take any kind of vimitins tablets? Thankyoy very much Xx