New to Group

[Smile2]

Hi. Just checking in for the first time. Was diagnosed with MPN last month and started hydroxyurea yesterday.

[Mazcd Partner MPNVoice]

hello Smile2, welcome to our forum. Which MPN have you been diagnosed with?

If you haven't already, I would suggest that you have a look at the information on our website mpnvoice.org.uk, there is lots of information on there about all the MPNs, medications, symptoms etc.

Best wishes, Maz

[Lifam]

Welcome to the group. I've learned a lot from this group and having lots of help here, everyone is very friendly and helpful.

[Smile2 in reply to Lifam]

Thank you!

[Cja1956]

Hi, and welcome to the group. I joined a year and a half ago and have found some extremely kind, supportive, and knowledgeable people on here.

Good luck on your mpn journey.

[Smile2 in reply to Cja1956]

Thank you!

[Windy51]

Welcome to the group I have been on here two months I have ET it’s very helpful

[Smile2 in reply to Windy51]

Thank you. Some of my questions have already been answered! And, it’s just really comforting to talk to people who are going through some of the same things.

[Smile2 in reply to Windy51]

Thank you!

[hunter5582]

Welcome to the forum. Hope you will share your MPN journey, learn and teach other what you learn.

Here a couple of good resources as you begin this journey.

legeforeningen.no/contentas...

mpninfo.org/conferences/201...

All the best to you.

[Smile2 in reply to hunter5582]

Thank you so very much!

[cata]

Hi Smile,

Don’t warry , I m surviving FOR 12 years treating PV with HU . If you have Any qustion I m available.

Regards

Cătălin

[Smile2 in reply to cata]

Wow - that really reassuring. I was told to expect a lifespan of 10+ years so I am ecstatic to see people on this forum who have passed that mark.

Thank you so much for your offer of help. I am sure I will be taking you up on that.

[cata in reply to Smile2]

Welcome . Regards

Cătă

[Minu68]

Welcome, I was diagnosed in February, and have found this forum and those on it very informative, supportive and helpful. It's good to have this community as no one understands like those going through it too.

[Smile2 in reply to Minu68]

Thank you for the welcome. You’re absolutely correct. I have already found it helpful and supportive.

[Smile2 in reply to Minu68]

Thank you for the welcome. You’re absolutely correct. I have already found it helpful and supportive.

[Hidden]

Hi Smile2... I agree with others, this is a great forum... fantastic people all going through the same thing more or less and I don’t have to hold back 😁 it’s great. I’ve actually been staring at my hydroxyurea on my counter waiting for the perfect day to start it in case of nausea, etc. Can I ask which MPN were you diagnosed with? For me it’s PV .. 3 years now. And what were your numbers at that you were put on hydroxyurea??