MPN-MATE RESEARCH FOUNDATION

[socrates_8]

Post by MPN-MATE Admin » Fri Feb 21, 2020 9:36 pm

Hey everyone...

Just a little update concerning some great news for the MATES website in Australia...

mpn-mate.com/forum/viewtopi...

Hopefully we will now grow from strength to strength...

Best wishes

Steven

[Mufftreacs]

Hey Steve,

Many congratulations on the new Charity.

Those of us this end all know how hard you have worked to get this off the ground.

Good luck and you have our support.

Best wishes,

Katie

[socrates_8 in reply to Mufftreacs]

Thanks Katie...

As well you know... I/we could not have done so without the support of you Jerry and a few others too...

Onwards & upwards...

Steve

[Ebot]

Fantastic news! Congratulations! Wishing every success as you go from strength to strength.

[socrates_8 in reply to Ebot]

Cheers Ebot...

Small first steps...

Steve

[JediReject]

Bonzer there Steve, , Congratulations, , this looks potentially like a giant step forward not only in terms of raising MPN profile there but putting MPN s up there to be taken as seriously as other types of C.

As you will have read in many posts it's hard enough to access a MPN specialist in the UK so I applaud anything that puts it out there and might make a few Haematologists decide to make MPN s their focus. Or even just decide to do some research and raise their game in order to improve their knowledge and be better equipped to help their MPN patients.

Cheers Buddy

Chris

[socrates_8 in reply to JediReject]

Hey Chris...

Great to hear from you too buddy...

Yes, MPNs are often treated like the poor Leukaemic cousin, and it's almost invisible for many of us having to live w/ an MPN, as well you'd know...

Hopefully, we will succeed... small steps to start, and then just keep trying to raise the bar on MPNs...

It would be awesome to see many more Specialists in MPNs... would it not?

Cheers Chris stay healthy & happy buddy...

Steve

[Inca in reply to JediReject]

Oh ,great to know you are still on site Chris.Hope you are doing well!!!I know by my own probs it's not easy to read or post these days.Keep Strong

Often think of you ....Sally...Bisous!!!!

[Bluetop]

Good news! I imagine all your fundraising contributed to this successs. Well done. How's the cucling doing?

[socrates_8 in reply to Bluetop]

Hey Bluetop...

Thanks for your response & encouragement...

MPN-MATE Research Foundation is now a small but growing group of MPN patients who are all hoping that we can make a small difference in this space to aid in creating better solutions for MPN patients...

Cycling is still coming along nicely, and is still at the centre of our current Fundraiser efforts... We will just keep chipping away at the bigger picture...

Best wishes

Steve

[Meatloaf9]

Excellent job! Thanks for all you do to keep us all informed. And good luck to you on your personal journey.

[socrates_8]

Hey Meatloaf...

Thanks for your response... Hope all is well in your world too...

It really is my pleasure to share whatever I can about MPNs and how we might all better manage our MPN journeys...

That's why FORUMs like this our so very useful and they help provide us all with positive strength and hope by uniting us with a common purpose to overcome by sharing our empathy with & for each other...

Best wishes

Steve

[mhos61]

Congratulations Steve, a great achievement!

Thanks for all the research that you do and more importantly, share with us. It is much appreciated.

Mary xx

[socrates_8 in reply to mhos61]

Hey Mary...

Thanks so much... It's always a pleasure to try to share what I can...

However, all I really know is that I know so very little of anything at all... But that is why I enjoy seeking out possible answers and sharing the findings... In reality, anything gleaned is just another step along this MPN journey we are all on together...

There are many good people here who do the same Mary, including your self...

That's why FORUMS like MPN Voice & MATES too... Are so needed & worthwhile to us all...

Cheers Mary...

Steve

[Mazcd Partner MPNVoice]

Congratulations and well done Steve, you are doing a brilliant job. Maz x

[socrates_8 in reply to Mazcd]

Hey Maz...

Means a lot coming from you too... You are quite a hard act to follow you know...

There's always so much more to do... is there not... ?

Small steps... one foot after the other...

Hope all is well in your world Maz...

Best wishes

Steve

[Mazcd Partner MPNVoice in reply to socrates_8]

Hi Steve, thank you my friend, and yes, always more to do, but you are definitely getting there and providing a really good forum to MPNers. All good here thank you, ET behaving quite well, thank goodness, though fed up with the rain and wind. Maz x x

[socrates_8 in reply to Mazcd]

Cheers Maz..

Best wishes

Steve

ox

[Tylerdog1]

Congratulations - I’ve learned so much from your informative posts

[socrates_8 in reply to Tylerdog1]

Cheers Tylerdog1, & always my pleasure to make them too...

That's what is so brilliant about us all having this & other MPN Forums where we can easily share our experiences, ideas and knowledge with & for each other's benefit...

Best wishes

Steve