A simple arthritis drug could be an effective, low cost solution to treat patients with blood cancers such as polycythemia vera (PV) and essential thrombocythemia (ET), a breakthrough study by the University of Sheffield has shown.
This article has some rather fascinating implications, in my view...
I can still recall how I made my specialist Test me to see if what I was suffering from was actually Rheumatoid Arthritis (RA). However, those tests proved negative...
Just recently, I was also discussing this with another ET/MPN friend whose doctor had sent her for Arthritis tests too... Awaiting results when we last spoke about it.
This question about this RA drug, largely refers to treating of the inflammation being caused by a variety of chronic conditions, and it might just provide some of us MPN people with another alternative pharmaceutical treatment regime... (?)
Best wishes all...
Steve
(Sydney)
Written by
socrates_8
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I’m currently in Cavtat, Croatia and strangely at the Hotel I’m staying in there is a large Conference with delegates from all over the world who are experts in gene mutations. I’ve chatted to a couple about my CAL-R diagnosis, of course they’ve never heard of it, and one told me that energies are put in to therapies that will benefit more people rather than focus on rare diseases. He didn’t mean to be unkind but reading articles like this makes me hopeful that one day our disease can be managed without the assistance of such toxic drugs as they are currently.
No problem... And belated congrat's on becoming parents too...
Yes, the problem w/ MPNs is just that they are so very bloody rare...
In Australia, this translates into an even bigger problem as there are so very few so-called, MPN Specialists in the Australian arena, unfortunately...
It s all about the money, (as always), an 'economy of scale' due to having a much smaller population, simply means less funding for research...
That is precisely the reason why I have started an Australian MPN Fundraiser, where I shall eventually cycle 20,000kms around Australia to raise awareness and funding for MPN-specific research, and to try to help promote more awareness of the need for more MPN specialists, and particularly here in Australia:
Wow, that’s an awesome undertaking Steve. I admire you for being so proactive and seizing control of your future.
Your showreel brought back memories of my trip to Australia around 10 years ago. It’s a great, but vast country. It’s crazy that within 4 years air travel that we can be in North Africa but you’re still in the same country!! It’s beautifully made by the way. At the moment I’m having to pretty much get signed off to fly as my platelets are still a long way off where they ‘should’ be, resting in the 700’s but it’s a choice whether to take more of the nasty stuff to get a lower platelet count or take my chances...
Yes, I wonder how many people actually realise that small but significant fact... 4.5hrs approx' just to get out of Australia... Crazy is right... It is BIG place down-under...
Thanks for your good wishes and compliments too...
Hopefully, you will return someday...
Sorry to hear that your platelets are remaining stubbornly high. I am Post ET/MF and mine are languishing in the 900s for these past few months... Not good, as I have already had two (2) TIAs, and I don't want anymore really... :-\
Best wishes to you & your family Jojo... & I hope you get it all sorted to aid in your travel plans soon...
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