Bone marrow biopsy negative for PV & JAK2 NEG

[Notlikecandy]

So with jak2 neg & BMB negative should I get another Bone marrow biopsy?

I feel great but blood cbc has my hematocrit at 58 and my hemoglobin 20.6

Its been high like this over 1 year . I still smoke but less. Now my VA doctor wants me to go to outside va oncologist & maybe get another bmb! Im just not sure I should!

[fee13]

What does the BMB say & what did they test for?

[Notlikecandy1 in reply to fee13]

They tested for polycythemia vera it was negative and did jak2 test also negative. Because his hemoglobin and hematocrit is high. Tests said no signs of mpn. But now they want to do another bone marrow

[fee13 in reply to Notlikecandy1]

There is a difference between polycythemia vera and secondary polycythemia. Look up the secondary causes. From what I can tell there are many causes for this and tests seem to be relatively easy to get but no mention of BMB's being done (this may be unnecessary?).

You may need to go back to your doctor to have these other tests done or hopefully oncology will follow up with more tests.

It can be as simple as dehydration & recommended that blood tests are taken in afternoon so body has rehydrated itself from no water during the night. Other reasons may be COPD and a multitude of other conditions.

[clubdino]

I would stop smoking and see what happens. I know it's easier said than done. When I was first diagnosed with ET I had a high hematocrit. The doctor asked me several times if I smoked. When I said no he said "are you sure?" He wanted to blame my polycythemia on smoking so bad. And there is another member on here that had polycythemia that was reversed after he stopped smoking.