Hello,
Since I am a newbie ET'er and learning so much from this site and all of you, I thought I would ask about how routine surgeries are impacted. I need bunyonectomies on both feet. My doctor said it should be fine since it isn't an internal organ that involves a lot of blood. That didn't help me much. Does anyone know if you are at a greater risk of clotting, than normal, after surgery?
Thank you!!
Hi! Was that your hematologist or your podiatrist who told you that? I’d double-check with the hemo, but that’s probably right.
I had a c-section with PV, but that’s internal organ-land. And I just required daily heparin injections for a few weeks and my usual check-ins with the hemo. Still not that big a deal.
Hi best to check with your haematologist and also to get advice about any medication you are taking, like aspirin, Hydroxycarbamide, you might be advised to stop taking the aspirin for instance for a few days, but you must check this with your haematologist. Good luck with the surgery, Maz
Don’t have anything done surgically without asking your Haematologist just to make sure. I had a pacemaker inserted and no notice was taken of ET. I ended up with a massive haematoma and was in hospital for a couple of days instead of overnight. Better sure than sorry.
I just had moderately serious surgery - I’m ET JAK2 on aspirin only. My haematologist wanted me off aspirin for a week prior, then on clexane for 2 wks and back on aspirin straight after. It’s been a week, and all good - apart from having to inject myself rather inexpertly with the clexane every night and giving myself a few bruises!
You will be fine but you must speak to your heamo. I had that done prior to diagnosis. Looking back at blood tests even though my platelets were over 500 I was told to come off clopidogrel for 10 days before surgery!!!! During that time I was lightheaded and in fear of having another stroke.
Your risk of thrombosis as a result of surgery would depend on your unique profile and the surgery in question. I have had several surgeries and stopped the aspirin prior to and days after the surgery. Something to be aware of is reactive thrombocytosis. Any time you lose a signicant amount of blood or sustain tissue damage and/or inflammation - your body's natural reaction is to produce more platelets. My numbers have jumped by 300k+ post surgery. The reaction does not happen with all sugerie, just those with more bleeding and tissue damage-inlammation. Talk to the hemo-doc for sure, but minot procedure should not be a big feal with ET.
I'm also due to surgery this summer, full hysterectomy + bi-lateral salpringo-oophorectomy (ovaries removed). Both gynaecologist & heamotologist have advised I will need to be on medication after, heamotologist thinks probably heparin, & stop taking aspirin before. The gynaecologist has already started consulting with my heamotologist which can only be a good thing.
I’m a bit late replying as this ended up in my junk folder for some reason, but I’ve had bunion surgery in the past ( pre Dx with MPN) and the real risk was of clots after the surgery due to immobility. As clotting is a risk with ET anyway, best to get advice from physios to help tou get mobile as much as pos. Its always important post op, but even more so for us.
Having said that, it was a v successful op for me and has given me pain free walking for years. Good luck.
Rachel
Thank you Rachel......
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